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Thanks for the helpful responses.

Does anyone know if the rules regarding access to medical records from your GP apply to hospital records? They are generally different systems.

Anyone done this? I assume I have a right to the images.

This is describing my current state pretty well...

That's a good point. I was thinking of a test that showed any past infection, rather than present/acute infection

I was just thinking about this earlier. A clear-cut diagnostic test for Lyme would really improve the situation. A lot of people would find they had been misdiagnosed.

I would put a lot of money on Justin Beiber not having Lyme disease. In fact I'd put a lot of money on a lot of people not having Lyme disease!

Definitely. Can be noise (I don't miss a thing), but also visual stuff, like someone moving towards me on screen has given me a completely overblown response.

It seems Crawley is churning out more and more of this non-quantitative social sciences garbage - the type of stuff you get from humanities academics. You can tell from the title alone with that silly quote.

Again, I'm not sure why putting forward these grand theories is helpful. It's simply a vague hypothesis that links various strands of ME/CFS research.

Yes, he seems genuine, but I'm concerned in the way he is going about engagning with patients. Even annecodtal data/evidence is best collected in an appropriate manner.

Yes, I think that's perhaps what he means. I'm not sure Twitter is the best approach for anyone. If he really wants to engage with patients, could he not be invited to join the forum?

Yes - I think this is what is implied. I'm really not following what he's trying to say. Thought maybe I've missed something.

I was going to start a new thread but I'll post here instead as my comments concern Bhupesh's tweets. Though I am happy for this to become a new thread. Dr. Prusty is clearly exploring engaging with patients over Twitter but some of his tweets have left me confused. First, I'm not sure what is...

Maybe @Dechi - if they so wish - could give us an update a year after the LDN trial?

My feeling with most interventions is that you need to give it at least a month, and probably two months. The problem with LDN is that you'll be told if you have no improvements that the dose is too high, or possibly that the dose is too low! As you are probably aware, the idea is to work up...

You might find this FB group helpful: https://www.facebook.com/groups/200010163370187 My personal experience was that it had little effect, apart from maybe affecting my dreams. I was not on it long enough though, so may give it another try. My feeling is there is a lot of very persuasive...

I just went to look for my MEPs and then realised we are no longer in the EU. I had forgotten. It's been that sort of year.

Here is a presentation by Francis Creed that has been uploaded onto the dxrevisionwatch website: https://dxrevisionwatch.files.wordpress.com/2010/01/hackettaward-creed.pdf

Francis Creed (University of Manchester) has edited a book on Medically Unexplained Symptoms with Per Fink