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I hate these sytematic reviews. They're just so lazy and unnecessary. Why do we need another review?

I wonder if Dr Loades realises her fellow peer-reviewer did not bother to read past the absract? It makes a mockery of the whole system.

I had seen this thread but not read it. I saw the article and the review history last night. "I've not read past the abstract". I am still fuming. What calms me down is knowing we have people like David, Jonathan and Michiel (among others) to set the record straight.

Might start using this name, see where it gets me.

I really like this collection of videos and hope they are shared and used widely.

those first couple of sentences in the abstract couldn't be more wrong. this looks like master's-level work at best, but I think it's PhD. :banghead:

I could write for hours on this, but to be brief: I've just started counselling which of course is currently over the phone. I made it clear from the start that I do not rate the questionnaires and PHQ9 / GAD7 scoring at all. My counsellor agreed. We also spoke about how the answers largely...

One chronically dry/stinging eye It is driving me mad. It has driven me mad for years. I am certain something is disrupting the lipid layer in my right eye, and I have a feeling it is something on the inside corner of my upper eyelid, though I don't have any proof apart from how it subjectively...

The segment wasn't about M.E. It was about any and all conditions that have associated with them fatigue and energy impairment - she just happened to mention M.E at one stage.

The guest is Catherine Hale who works with the Chronic Illness Inclusion Project who recently released the report on energy impairment: https://s4me.info/threads/centre-for-welfare-reform-report-energy-impairment-and-disability.14887/#post-256789

Yes, he probably has the same chip on his shoulder as most people. But highlights the issue with the name PVFS, in the same way CFS is not a helpful term.

I think he thinks he is still experiencing the illness per se. Can anybody be certain he is not experiencing longer-lasting Covid symptoms or that the virus is not still there in some form or other? Of course, the longer this goes on, the less likely that is. But at the level of weeks I'd say we...

I agree. I think Nina and Dr Hng have or are working on something together. Nina does a lot of work on ME education - a lot of it behind the scenes.

They have clearly given their consent to being filmed, so in that respect there is nothing we can (or should) do. I am also bothered by the negative impact filming a session could have (in the way it may influence the course of the conversation, even indirectly), and also by the fact Alex is not...

Can you link to the video you are referring to. The link takes you to his profile page. I assume you are talking about the In Therapy series. He / the OHC produce so many videos it is almost impossible to keep up.

That's because it's bollocks. :)

I have messaged Nina about this. I think she is in contact with Dr. Hng.

It would be best to find out what the barriers to publication were. It could be expense, or something like that. Is she on the forum?

I don't know if I'll ever get to read the full report, but I think this is a good approach and a sensible overarching theme with which to advocate for change.

https://www.centreforwelfarereform.org/uploads/attachment/681/energy-impairment-and-disability-inclusion.pdf?utm_source=Chronic+Illness+Inclusion+Project&utm_campaign=3f6549f63d-EMAIL_CAMPAIGN_2019_12_10_04_51&utm_medium=email&utm_term=0_7303002384-3f6549f63d-78135457 This has just been...