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Yes - this is what I thought, and perhaps what the paper should have been.

Thanks. de Quervains is sort of ruled out I think. The pain is more on the inside of my palm rather than on the upside of my hand/wrist and in fact the pain is not the issue - it's moving it / stiffness.

Sorry - my mistake. I've got you now.

Ok, understood now. No - I saw a different tweet. Someone asked what mito testing was used and someone replied Myhill/McClaren.

Hi Grigor. I don't understand your response to my question. Are you saying the test is not used in this piece of research?

I have not read the paper, or even looked at it. Have they really used the Myhill/McLaren mitochondria tests (as I just read on twitter)?

I am a skeptic by nature and having worked in academia I feel the quality of science being published is slowly being reduced by ever increasing funding and publication pressures. I have no biomedical or clinical science background but I am sort of shocked by some of the stuff that gets published...

I may have to buy one - my right thumb is just driving me mad. Just constantly stiff and swollen at the base of thumb but not arthritis apparently. Anyone use one?

Thanks. Yes, I thought about pre-emptively resting. I feel in some sense this is could almost be 'hormonal' - perhaps cortisol-related.

Anyone else? It's like that afternoon slump that affects many people but much much worse. For me, it occurs around 4 pm and lasts until around 7/8 pm. Everyday. I often go back to bed but very rarely sleep. I've not found anything to help. It's only on the occasional 'better' day that I don't...

An evergreen response. :grumpy:

I think she did have cognitive and neurological symptoms. If I recall she couldn't read for a while. It is worth re-reading her essay on becoming ill, because it's very good. https://www.newyorker.com/magazine/2003/07/07/a-sudden-illness

If her written accounts are an accurate portrayal of her illness, Laura would have been classed as having moderate M.E (with some severe episodes). It's still astounding that someone can be ill for decades and then have a decent 'recovery' after 25 years.

I genuinely don't understand how changes to the brain can be non-structural. Functional doesn't exist. At the most basic level, everything functional can be reduced to the structural. What they mean is they can't see any structural changes.

Yes, I have no access to a printer. No library. No home printer. No relatives with a printer....

Oh yes, I'm certainly doing everything electronically. I wouldn't dream of handwriting the form - it's such a disadvantage to do so. My only issue now is that aside from not being able to gather my supporting evidence, I can't print the e-form and my answer sheet. PS Thanks for all your helpful...

That's a good idea, to use a fatigue scale. I really cannot be bothered detailing the minutae of my life and each and every symptom, especially when day-to-day variability is limited with regards to activity.

Has anyone submitted a diary along with their ESA/UC or PIP form? I am struggling with what to write and include. I've seen some PIP diaries explicitly based around the descriptors, which is of course a sound idea, but I've decided not to go down that route, and instead just give an overall...

I just saw this on the BBC website: https://www.bbc.co.uk/news/uk-england-london-52151662 It features Paul Atherton, who lives with ME/CFS and sometimes posts online about his illness ( https://en.wikipedia.org/wiki/Paul_Atherton ) Must be an awful situation for him.

The 2007 review used CFS/ME. https://www.nice.org.uk/guidance/cg53