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I didn't know ME Advocacy had a European Office....

This has reminded me of this radio show that was posted here a couple of weeks ago about Doug Lindsay who came down with a sort of M.E like illness, after his mum and aunt had suffered for decades, and pretty much self diagnosed and got someone to do surgery on his adrenal glands...

Really, huh - what are the chances of getting Lyme and mono at roughly the same time?

This sort of wave of publicity is the type of thing the CMRC project could do with if funded.

I do get a slight bluriness on bad days. This is perhaps the only vision symptom that is an actual eye (or rather eye muscle) issue.

For reference, here is a past post in which I describe my experience of some of these symptoms and a related issue with my brain seeminly not able to process my vision properly...

PS Thanks for posting the entopic phenomena video. I have this and didn't know it had a name! Like swirls of ink of slightly different hue moving around when my eyes are closed.

I looked into the connection about 18 months ago when my visual disturbances started. You'll find some forum threads I started if you do a search on here. Another area that desperately needs looking into in more detail. The only work I saw on ME and vision was from Leicester and it didn't...

I love weed but it has a very strong effect on many of my symptoms. The effect it has on my musculoskeletal system is profound. It's like all the areas I have had problems with come online. Sometime it has a positive effect, but other times it has made me feel really stiff, sore, and...

"without any real biological source".... why can't reporters get this right. "without any known biological source" is infinitely better.

I asked recently if I could get some help with psychological issues (not serious - just coping with being ill, etc.) and got told if I wanted to sit down with an actual psychologist it would be 'years'. My GP wrote to the mental health team and asked about other options. Of course all that's...

What I don't understand is what these people can offer that isn't available on the internet? I imagine what benefits users of this service the most is not any actual 'treatment', but rather having someone there who cares and can listen.

you notice an effect?

I am really skeptical when it comes to people seeing a noticable effect from herbal or nutritional supplements. Do people really take turmeric, for example, and notice an effect?

I have just seen this new paper on Twitter. A timely reminder that imaging and the subsequent analysis is not an exact science. https://www.biorxiv.org/content/10.1101/843193v1 Abstract Data analysis workflows in many scientific domains have become increasingly complex and flexible. To assess...

I can relate to this. I had years after my initial trigger but before ME onset where I knew I wasn't well. I would be in work and just unable to sit at the computer without pain in my shoulders for less than an hour. I had to keep getting up, I'd often go swimming midday to loosen up. It felt...

Thanks for your involvement and work Andy. I didn't realise this announcement was being made today. I've just seen some social media stuff from Action for ME. I hope even at this early stage there will be a collaborative effort to promote this project to the furthest reaches of our community...

When I had acute appendicitis in 2015, the results came back that it was a rare case of granulomatous appendicitis - with a prevalence of order 1% of all appendicitis cases. "Granulomatous appendicitis (GA) is a rare form of appendicitis described to occur due to varieties of causes such as a...

what the merry fuck is this pile of shite.

exactly. i sleep around 9 hours a night all the way through. i often wake up feeling 'poisoned'.