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i noticed at least some of the women have been told their subsequent symptoms are due to fibromyalgia and 'chronic fatigue'. Not good enough.

exactly. i am familair with the shortcomings of the test. I have done a month gluten-free before - it was hard to tell if things were better or not. I felt like my stomach was little better but perhaps not other symptoms. But with the cycle that I go through it is really hard to distinguish what...

I've had a coeliac screen which came back negative, but am so tempted to try gluten free again for a month.

I imagine the gut microbiome correlates with any significant change in bodily systems. The key question of course is: is there a causal connection?

Stanford now checking for horns in ME patients. ;)

this is a good article and should be shared / referenced as needed.

I have often felt the lymphatic system plays a key role in this illness. I have problems with lymph nodes in my neck and upper chest on my left side only. It is my understanding that there are still a lot of unknowns about this system. It was only recently that it was confirmed that the brain...

Another paper to add to Esther Crawley's expansive list of can-i-really-get-a-paper-out-of-doing-this-lol research output.

I am very conflicted on this. I've actually had a serum active B12 test which came back in the normal range, so this is perhaps further evidence that I am not deficient. However, I look at the list of symptoms - some of them very specific - and think it is worth a try. My Dad's partner is a...

Merged thread Hi folks, Was wondering if anyone has self treated with B12 injections? I am looking to trial this. I tick many of the boxes for issues with B12 (fatigue, glossitis, vision issues) though my serum B12 is in the normal range. I am minded to try and source hydroxocobalamin and self...

https://qz.com/work/1629015/burnout-is-a-medical-condition-says-the-world-health-organization/ “Burnout” is big this year. The term has been applied to everything from being tired at the weekend to the malaise of an entire generation. Now the World Health Organization, an international body...

I don't know if there is a tread on here about this, but it was confirmed this afternoon that Jennifer Chittick - one of the three women featured in the article - passed away yesterday. Shocking.

my thoughts exactly. one thing I do feel is that she has gone *very* public with all this, very early (5 months after surgery). In the M.E. game, 5 months is nothing.

This video is from a few years ago, from the Academy of Nutritional Medicine conference. We have in the first five minutes claims that ME, CFS, and fibromyalgia are 'not diagnoses' and of course the silly, totally unproven, equation ME = CFS + Inflammation. It should be possible for her opinion...

this should be reported. it's a ferritin test in combination with a very basic thyroid test (just TSH i think). these should not be marketed as 'chronic fatigue tests'. even 'fatigue tests' may be illegal.

thanks for your replies folks.

I'm so sorry that you have to see my feet this early in the morning ;), but I'm interested to see if anyone here has the same issue. My feet, and to some degree my hands hands, look very different in the morning. Something is happening with the blood flow. I get a sort of mottled appearance...

"chronic fatigue women" o_O

the PDF was changed on the 9th May. It doesn't necessarily mean there is a new member announcement. Could be something like a member's affiliation being changed.

The latest change date is 09 May, so something must have been updated....unless it was something trivial.