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It's also possible that I could pay some voluntary money now towards my NI/tax record so that I could claim for contribution-based ESA and not just income-related ESA (Universal Credit). Is this worth looking into?

Ok, it seems like as I live in an area where UC is available, and because I have some income (although very low), I will have to make a claim for UC. As for the freelance income, I should probably declare myself self-employed, even if I end up paying no tax...

Thanks for the replies. Main confusion is whether I just look to start a Universal Credit claim, or whether I first have to go to the old system - ESA? Can anyone here advise on this? @Sly Saint youre reply makes me think the two systems are not independent... Can I rule out looking into PIP...

Hi all, Looking for some advice given it's possible I may have to go down the route of claiming benefits. First a little about me: I'm a single 31 y/o who will soon be living alone in a flat. I have savings but these fall under the limit over which you can't claim certain benefits. I am mild...

Staurt has gone several decades managing his ME pretty well - he seems to have remained mild-moderate and has carved out a successful, active career and he seems genuinley happy and content. Maybe this was luck. But part of me can see how his attitude to his illness may have helped. As he...

there's now a new upload. he's since had a bad period and so is less chipper.

Can anyone confirm what time the radio coverage was on? And what station, if not Radio 4. Thanks

can anyone say more, without breaking the embargo?!

This is why I made the comment about the Frontiers journals a few weeks back. A lot of ME/CFS studies end up there, and I don't think it's a good thing.

Merged thread Once again on B12 / folate... :banghead: When I browse the symptoms of B12 and/or folate deficiency I see things I have suffered with for years. Tinnitus, palpatations, tongue inflammation, etc. Now I know these overlap with ME symptoms, but I want to try supplementation and see...

Yep, I think we have experienced the same thing!

not sure on adrenaline, but the sleep studies have been pretty inconclusive.

this PALS address is one of the three I have sent to

A note that the address Cfs-Meliverpool@nhs.net which I obtained from the referral letter posted on the service's website, doesn't seem to exist now. I'm still not sure the letter has been sent to the most appropriate addresses...

Folks, This has angered me. RE the 'Although there is no disease...' statement, there is no excuse for this. I have drafted a letter to the Liverpool CFS Service and the trust's Patient Advice and Liason Service. It can be found here...

Just seen this leaflet. What a fucking mess, regardless of the truly shocking 'there is no disease' statement. Leaflet somehow acknowledges PEM and advocates for pacing, yet the Liverpool CFS service claims to follow NICE guidelines. Absolute shit show. An incoherent mess, all washed down with...

Author clarification to paper: https://www.bmj.com/content/363/bmj.k4583/rr-18 I wonder how often this stuff goes on in trials...

*Trying to embed tweet in post - may or may not work! <blockquote class="twitter-tweet" data-lang="en"><p lang="en" dir="ltr">More developments from that low-carb study a few weeks back: The authors are now saying they had 2/3 of the data (on 50 percent of the study participants) before making...

Thanks for suggestions. I have used flux in the past and my laptop automatically adjusts the light depending on the time of day. This isn't just a laptop thing - it's there all the time. Just worse when trying to work at a computer. *screams*

The neuro symptoms that started last year are still driving me nuts. The vision issues I've been having (floaters, after-images, problems focusing) are there almost all the time. But things get much worse when I'm on the computer. I think my brain is just struggling to take in all the...