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@Trish you’re right and I didn’t intend to give the impression I was (or even have the competence to) giving her a diagnosis. I absolutely do not blame that poor woman for being sick and tired, and I agree we don’t know the full story. Like many others I felt the need to vent when once again it...

I was too old to get the HPV vaccine, and anyway I got ME at a much later point. Now I have HPV and ME :emoji_stuck_out_tongue_closed_eyes::emoji_face_palm:

Sounds exactly like overtraining syndrome to me. Around here they tend to say it’s “similar to ME”, which is bullshit too. Yes, you get a sudden inability to perform at your normal level but they can still do light training and they don’t get PEM or even pain of any kind. So more like a really...

@Forbin it’s been about 20 months since my onset. Thank you for the tip about ruling out other conditions, I think that will have to be my goal going in. Probably true. I wonder if presenting it as if I’m challenging my diagnosis might be more productive? Given that she will already know I have...

Same principle with HRV, seems like you've already got it!

There's a series of blogpost about how to monitor and use HRV for ME/CFS here. There's a lot of text (but nice screenshots and examples too). Important point about HRV - like heart rate it's very individual. You'll need to track it over time to learn what are your optimal levels and warning...

That's my experience too. I have a great chiro and it helps a lot, however right now it's too much for me to go regularly so I depend on my portable sauna to keep from seizing up. It's not perfect but it keeps it under control:) A good osteopath is great too. I actually did the crash and burn...

Very good point. I have all of the above. I'm not sure what I can get out of further investigation, but it could be worth a try while it's free of charge:)

This is great. Luckily I have already bee assessed by a psychologist and have it on paper that I'm not depressed or anything else:p I think I'll have more issues with the fact that I look super healthy and energetic even if I feel like I'm dying.

That's probably a good idea! I'll bring some references just in case...:thumbup: The climate for ME patients has improved a lot in Norway, but not everyone got the memo:laugh:

Thank you for taking the time to help:) My expectation is actually just that, that she'll be like so many other doctors and look down her nose at me like I'm wasting her time. That is exactly why I want to be well prepared and hav specific issues to ask about. She might be really nice, I'm just...

I'm seeing a neurologist for the first time since the diagnosis was made and since I know many of you have seen at least one before, I'm hoping you might have some tips to what I should ask or make sure to mention while there. I have some issues with my spine/back like I mentioned in another...

It's interesting how many of these early symptoms we have in common! I used to, but don't now, have Soaking night sweat - had to start wearing fully covering pyjamas in cotton so I could change them not the bed. Still had to sleep on a towel most nights Sudden loss of all muscle power -...

It is the downside of having such a small and neat monitor. I use a polar a370 as well for daytime heart rate and AT alarms. The screen is an important part of that, which would be difficult with the ring anyway. I use the apps for both, then track the numbers I want to follow closely in...

I have a coupon code for 50% off on pre-orders if anyone could use it:) (my old oura still works, so no new fancy for me)

I have the Oura and tried Precise.ly for a while, but it was too much effort to keep up. It was in the very early days though, so I'm curious to see how this works out:) The ring certainly tracks all the right things, it's extremely helpful.

I use heart rate in many ways. I have both a Polar A370 (fancy heart rate monitor) and an Oura ring. At night, my Oura ring measures resting heart rate and average heart rate variability every 5 minutes. Together they give a pretty detailed picture of my level of restitution. During the day, my...