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News in Brief posts for w/c 22nd July. Facebook: https://www.facebook.com/sci4me/posts/pfbid021hUf6VqzNPoxj1Dwjez9dVCaLUwoKd3A54qeU2NnkMAsqFRYgfyuBfmJosL8pTaVl Mastodon: https://med-mastodon.com/@s4me/112863246493256295

Miller using the standard misrepresentation, not admitting that the narrative that he favours has been the dominant one for decades and has resulted in tragedies such as this one. He is part of the problem.

Link is to a tweet that shows a screenshot of a tweet by Zachary Grin, that was retweeted by Paul Garner, that claims that inability to eat in ME/CFS is "clearly functional". https://x.com/Silas33/status/1817104914922799261

Can't see any text but a couple of papers on CFS are listed in the references.

Abstract Fatigue is a multifactorial symptom that is commonly faced by patients with cancer, chronic disease, and other serious illnesses. Fatigue causes suffering across biopsychosocial domains and affects patients and their loved ones. In this article, a consortium of professionals across...

Abstract Continued improvements in the treatment of pulmonary infections have paradoxically resulted in a growing challenge of individuals with post-infectious pulmonary complications (PIPCs). PIPCs have been long recognized after tuberculosis but recent experiences, such as the SARS-CoV-2...

Abstract Chronic Fatigue Syndrome (CFS) is a complex and perplexing medical disorder primarily characterized by persistent and debilitating fatigue, often accompanied by a constellation of symptoms, including weakness, dyspnea, arthromyalgia, sore throat, and disrupted sleep patterns. CFS is...

Broadly, I wonder if a possible explanation might be the culture in which physicians are trained and work in? Where they are presented with the information that they need to do their jobs, so by implication they don't need to know more, and if they ever do, they will be given training courses...

The irony being, obviously, that the inquest hasn't completed, and so it hasn't been determined whether the GP was "blameless" or not. "But hey – that’s not as catchy a news hook now, is it?"

I more meant that it could be that those people who report PEM might have both PPS or MS as well as ME/CFS, assuming that they are distinct conditions.

In case it helps, in Google, you can enter site:s4me.info <your search term> and it will search publicly viewable threads here for that term. I don't know if this works in any other search engine but would be surprised if it didn't.

Or they could have ME/CFS themselves as well?

Email sent, for some reason, to those of us signed up to ME/CFS Information email list. News from NIH: Planning for the Next Phase of the RECOVER Initiative Dear RECOVER & Long COVID Community: We are writing to let you know about an important evolution in NIH’s operational approach to...

A reminder of these two opportunities which, I understand, are still looking for PPI representatives.

From the ME Research UK summary of the presentations at this years Invest in ME conference, "Effort Preference – Not a Big Deal? Dr Brian Walitt presented results from the NIH’s intramural deep phenotyping study of ME/CFS. He highlighted the significance of birth sex in understanding...

If anybody can stomach it, UK GPs discussed the inquest on Reddit here, https://www.reddit.com/r/doctorsUK/comments/1e9qrzh/sad_case_of_patient_and_gp_seem_to_be_let_down/

The first I saw of this campaign was on social media yesterday.

Can I suggest new posts for each update, rather than editing the one post, so that those who are following this thread in 'real time' don't have to search back to your post to see if there is an update or not.

Abstract Background There is evidence to support COVID-19 rehabilitation programmes improving persistent COVID-19 symptoms; however, there is concern that therapies that include an exercise component may increase fatigue and post-exertional symptom exacerbation (PESE). The objectives of the...

https://www.bbc.co.uk/news/articles/cpd9vm8p2plo - latest BBC article