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Highlights We identified two somatic-health and four mental-health based profiles. We found no association between somatic – and mental-health based profiles. Health related quality of life negatively associated with vulnerable profiles. Unintegrated care may lead to undertreatment of...

Full tile: Research priorities for medically not yet explained symptoms expressed by patients, carers, and healthcare professionals in the Netherlands following the James Lind Alliance priority setting partnership approach Highlights Professionals/patient representatives identified top...

Abstract This research aims to study the factors contributing to Long COVID and its effects on motor and cognitive brain regions using population surveys and brain imaging. The goal is to provide new insights into the neurological effects of the illness and establish a basis for addressing...

Abstract An increasing number of reports suggest an association between a newly recognized disease cluster and significant and often disabling gastrointestinal (GI) symptoms. This cluster is composed of diagnoses of hypermobility spectrum disorders (HSDs) such as joint hypermobility and...

Full title: Side-effect expectations are associated with disability, physical fitness, and somatic symptoms 3 months after post-COVID neurological inpatient rehabilitation Highlights Post-COVID-19 condition is asscociated with long-term health issues. A biopsychosocial approach seems...

Abstract Sleep is a physiological state that is essential for maintaining physical and mental health. Sleep disorders and sleep deprivation therefore have many adverse effects, including an increased risk of metabolic diseases and a decline in cognitive function that may be implicated in the...

Wanted: 1,000 women to help ‘get even’ with the agony of endometriosis "She is now poised to take up the fight against the disease that so savagely altered her earlier life. Later this month, Macklin – who went on to found the HALO Urban Regeneration Company – will join scientists at Edinburgh...

Our Mission Our mission is to reduce diagnostic delay and develop personalised treatment approaches for individuals with endometriosis by studying data and biological samples collected from patients over an extended period of time. Our Objective The objective of the ENDO1000 project is to...

This is not a DecodeME paper. This team have looked at the blood test results from participants in the UK Biobank.

"Cases self-reported a diagnosis of ‘Chronic Fatigue Syndrome’ (CFS) in verbal interview at their first visit to a UKB Assessment Centre (UKB field 20002); also, either they answered “Yes” to the question “Have you ever been told by a doctor that you have Myalgic Encephalomyelitis/Chronic...

Twitter thread from Chris Ponting "#ME is clear to see in the blood of 1,455 #pwME <New Preprint, not peer reviewed> 116 blood molecules or cells are significantly different between #pwME and population controls & in both females & males & these differences are NOT due to inactivity 1/4 Only...

This is the preprint. Go to post #186 for the published version. Abstract Myalgic Encephalomyelitis (ME; sometimes referred to as chronic fatigue syndrome) is a relatively common and female-biased disease of unknown pathogenesis that profoundly decreases patients' health-related...

Abstract Purpose To explore fatigue and physical activity behavior experiences and management, with an emphasis on activity pacing among adults with chronic conditions. Materials and Methods Semi-structured interviews were conducted with 15 adults with chronic conditions and the symptoms of...

Abstract Background Individuals may experience a range of symptoms after the clearance of the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection. This condition is termed long COVID (LC) or Post-COVID-19 condition (PCC). Despite the appreciable number of symptoms documented...

Published papers thread for w/c 19th Aug. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid021CfQ1AYR2KgDR2DjQVs7nDFUFvHP93CobDMcW5Vu6xXpVY6WsJqXEGKkC7fyvLYHl Mastodon: https://med-mastodon.com/@s4me/113027297699386155 Bluesky...

"LBC (originally the London Broadcasting Company) is a British phone-in and talk radio station owned and operated by Global and based in its headquarters in London. It was the UK's first licensed commercial radio station, and began to broadcast on Monday 8 October 1973,[1] a week ahead of...

News in Brief posts for w/c 19th Aug. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid02AicMGDLHANPkvxUX983dX6J78CkzNxdTCSjTPHLxVhbmyp2Jqt1USX37dngtFzxol Mastodon: https://med-mastodon.com/@s4me/113021928266069438 and now Bluesky...

Something that wouldn't have had to happen if the ME/CFS community was listened to.

Abstract The formation of memory T cells is a fundamental feature of adaptative immunity, allowing the establishment of long-term protection against pathogens. Although emerging evidence suggests that metabolic reprogramming is crucial for memory T cell differentiation and survival, the...

Video has now been removed. The Chronic Collaboration tweeted "Re. our interview with Dr William Weir, as people are asking: After a comment from Maeve's mother, Sarah, we decided to take the video down as per her request (see image) below. We don't want to cause anyone any distress, hence its...