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Abstract Introduction Gulf War illness (GWI) is an environmentally-triggered chronic multisymptom illness typified by protean symptoms, in which mitochondrial impairment is evident. It has been likened to accelerated aging. Nuclear genetics of detoxification have been linked to GWI. Objective...

Full title: A description of the development of an innovative multi-component long COVID treatment program based on central sensitization with preliminary patient satisfaction data Highlights Long COVID is the persistence of COVID-19 symptoms for >3 months without an alternative diagnosis...

Now at 11,320 signatures. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Petition update posted to Bluesky, https://bsky.app/profile/scienceforme.bsky.social/post/3l2c6cut2fc2k

Trial By Error: Post-Inquest Comments from Sarah Boothby, Maeve’s Mum https://virology.ws/2024/08/20/trial-by-error-post-inquest-comments-from-sarah-boothby-maeves-mum/

Abstract Objective: Persistent somatic symptoms (PSS) describe recurrent or continuously occurring symptoms such as fatigue, dizziness, or pain that have persisted for at least several months. These include single symptoms such as chronic pain, combinations of symptoms, or functional disorders...

Now at 11,301 signatures. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Social media post about the update. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid02zd8YXqpdsEqEALTH2ccfapuWvfpmEncbK48VCvcK26QKXYQMd93Kb5jay7kbi9oil Mastodon: https://med-mastodon.com/@s4me/112993769795281538

[Not watched this myself] Maeve Boothby O'Neill: the Chronic Collaboration speaks to Dr William Weir "Maeve Boothby O'Neill died in October 2021 of starvation due to very severe myalgic encephalomyelitis (ME/CFS). After the conclusion of the coroner into her death, Steve Topple of the Chronic...

In general, outrage doesn't get published in mainstream media about subjects which are considered to be niche subjects, such as ME/CFS. That all articles, at least that I read, reported on the inquest without giving a voice to the BPSers or otherwise psychologising patients represents...

Quotes from this study. "we first performed a comprehensive microarray screening of 46 genes from the PAXgene total RNA samples of ME + OI (n = 4) subjects" "Based on the microarray data, we further validated the expressions of 3 critical enzymes of PPP including G6PDH (Figure 1(D)), TALDO...

Summary We discovered high-titer neutralizing autoantibodies against interleukin-10 in a child with infantile-onset inflammatory bowel disease (IBD), a phenocopy of inborn errors of interleukin-10 signaling. After B-cell–depletion therapy and an associated decrease in the anti–interleukin-10...

Published papers thread for w/c 12th August. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid04QRgi1VK46U5JWnB9dHcqMoWL8qo6unSkDkLLqjQJAF2v4bv4dKpGNptTZM3f624l Mastodon: https://med-mastodon.com/@s4me/112987615523981594

Karen's family have created a Twitter account, https://x.com/teamkarengordon In a tweet they ask, "We need to find as many examples as possible of people with ME who have had or are having home TPN (I/V feeding). Worldwide & especially the UK. Please will you/a family member/a carer contact us...

Latest update St Marks hospital still refusing to give Karen remote setting up of home I/V feeding. "Karen spent a lot of time and energy preparing for the call with St Marks. On Friday the 16th of August, Karen had the call with Dr Gabe, Lead Consultant at St Marks Intestinal Rehabilitation...

News in Brief posts for w/c 12th August. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid02T1PAzNnfw17px7Z94KDTQqogZzgHEXdTM8RV4kXhB3MjpcZDyoShgHwfwAZdPWyql Mastodon: https://med-mastodon.com/@s4me/112982377830274490

Full title: Comorbidity rates of autism spectrum disorder and functional neurological disorders: A systematic review, meta-analysis of proportions and qualitative synthesis Abstract This study evaluated the comorbidity rates of autism spectrum disorder (ASD) with functional neurological...

The curious incident of the author who couldn’t read or write: Mark Haddon on long Covid and overcoming five years of brain fog "A heart bypass in 2019 followed by a Covid infection left the novelist unable to read a book, let alone write one. Five years on, he recalls the steps that have...

Twitter thread from Tilman Andris highlighting the new comment and the petition.

But your proposed standardised plan would be complete, so there would be nobody to 'working with you' to fill it in.