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Published papers thread for w/c 5th August. Facebook: https://www.facebook.com/sci4me/posts/pfbid02F9aFAriAWKVgZjC3w5KHSYHFdHHUtSchVpnYNjw3EvAWiK8yKu7w1ty4vxg5ycpJl Mastodon: https://med-mastodon.com/@s4me/112948174326304952

Trial By Error: Valerie Eliot Smith on the Inquest Findings https://virology.ws/2024/08/12/trial-by-error-valerie-eliot-smith-on-the-inquest-findings/

Heightman and Van Der Feltz-Cornelis are familiar names from FND papers.

News in Brief posts for w/c 5th August. Facebook: https://www.facebook.com/sci4me/posts/pfbid033HYnbbLkWB3UUbTwxW8YPPE9tEEbCrKHWiogtjVvvJPk3HUz8KrEJiKRaDVKb5qgl Mastodon: https://med-mastodon.com/@s4me/112942701052818861

‘I’ve been tired since I was 13’: ME patients hope harrowing inquest will change perceptions https://www.theguardian.com/society/article/2024/aug/10/me-patients-maeve-boothby-o-neill-inquest Think that is a more a review article of the inquest and background than anything else.

The forum has a standing request that

The longest duration the DecodeME questionnaire asked about was 10+ years. The results from the first 17K participants was "Most (61.3%; n=10,463) participants have had ME/CFS for over 10y, and 81.6% (n=13,924) over 5y" Typing myalgic encephalomyelitis by infection at onset: A DecodeME study...

ME/CFS is mentioned a grand total of twice in the whole review. "Due to near-total absence of evidence from randomized clinical trials to guide treatment decisions, approaches for the assessment and treatment of respiratory sequelae106, cardiovascular complications107, fatigue108, cognitive...

Summary from Action for ME, "The coroner provided a very detailed overview of all the evidence and chronology of events from Maeve’s first diagnosis of ME to involvement from her GPs, hospital admissions and the last few days of Maeve’s life. The recorded cause of Maeve’s death will be one of...

Sean O'Neill on Twitter, "It's important that Maeve's inquest recognised the seriousness of this awful illness. What is more important is the final hearing on Sept 27 to consider a Prevention of Future Deaths report. The public health minister @GwynneMP understands ME and says Maeve "fell...

Thanks, but all credit to Trish, I just sent the email. :)

Trial By Error: Whitney Dafoe and Naomi Whittington Reflect on Severe ME and the Inquest into the Death of Maeve Boothby O’Neill "On Friday, August 9th (tomorrow), Deborah Archer, the coroner who presided over the inquest into the death of Maeve Boothby O’Neill, will issue her findings of fact...

Previously discussed here, NEWS: Chairman Bernie Sanders Releases Long COVID Moonshot Legislative Proposal

Thanks. In case it wasn't obvious enough, I was quoting selected sections from his own post (in a members-only thread), which can be found here, https://www.s4me.info/threads/bob.1068/page-2#post-41205 ETA: Now removed quotes from my previous post.

I remembered today that Bob Courtney had issues with nutritional intake and that he was actually sectioned. And Naomi's writing about how care and compassion should be a given echo Bob's writing from 6 years ago. You can find him posting about his experience here...

Trial By Error: Sean O’Neill’s Inquest Statement "Last Thursday, both of Maeve Boothby O’Neill’s parents testified at the inquest into her 2021 death from ME-related complications. (I earlier posted Sarah Boothby’s statement as read into the record.) It was the penultimate day of two weeks of...

Key Points Question How is the choice of guideline-recommended cutoffs for ferritin associated with the incidence of iron deficiency diagnoses in primary care? Findings In this cohort study of 255 351 adult primary care patients, ferritin cutoffs of 15, 30, and 45 ng/mL were associated with...

Thread here, Life-Threatening Malnutrition in Very Severe ME/CFS, 2021, Baxter, Speight, Weir

Trial By Error: Sarah Boothby’s Statement to the Inquest "The two weeks of public hearings in the inquest into the death of Maeve Boothby O’Neill ended on Friday. (The coroner, Deborah Archer, plans to issue her findings on the facts this coming Friday.) Last Thursday, both of Maeve’s parents...

Published papers thread for w/c 29th July. Facebook: https://www.facebook.com/sci4me/posts/pfbid0v69QwaAaqBeQXFwaskwH1uAsPNukBm6gKXwyrobDxVWkeSbY5BnAWpa2FrAP8veDl Mastodon: https://med-mastodon.com/@s4me/112908394022134457