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  1. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 29th July. Facebook: https://www.facebook.com/sci4me/posts/pfbid0FcywNbekZZfC76Lz7p4hraBdY2iS33BgdasU9wPgs5tR9TCX5rhPw2MFxbtEyhTol Mastodon: https://med-mastodon.com/@s4me/112902796155709186
  2. Andy

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Not a moderator but here is the relevant forum rule. "Rule 7: Do not violate copyright law It is not permitted to post entire copyrighted articles or PDF files, but full abstracts from research papers may be quoted so long as the original source is credited or linked to. Under "fair use"...
  3. Andy

    Review Long COVID: a clinical update, 2024, Greenhalgh et al.

    How unsurprising, a publication on Long Covid that has Greenhalgh as one of the authors and that barely mentions ME/CFS, especially as it is subtitled 'a clinical update'.
  4. Andy

    A Long COVID definition: A Chronic, Systemic Disease State with Profound Consequences, National Academies, 2024

    Long Covid Defined "Here, we describe the process and rationale for the resulting 2024 NASEM long Covid definition.5 As committee members and lead staff who produced the definition, we can attest that the process inspired discovery and deepening appreciation for the reality and severity of this...
  5. Andy

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Trial By Error: Dr Weir’s Letters on Treatment of Maeve Boothby O’Neill William Weir is an infectious disease physician in London who has treated many ME/CFS patients. He has been involved in some of the ongoing cases in England in which severely ill teenage girls and young women, and their...
  6. Andy

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Times: ME patient ‘would have received better care if she had eating disorder’ https://archive.ph/2024.07.31-042751/https://www.thetimes.com/uk/healthcare/article/dietitian-warned-of-tragic-outcome-for-me-patient-tlhflsjqc#selection-2117.0-2120.0
  7. Andy

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    The British Dietetic Association webpage on ME/CFS, https://www.bda.uk.com/resource/chronic-fatigue-syndrome-diet.html
  8. Andy

    Psoriasis drug [Ustekinumab] shows promise for treating childhood diabetes

    A clinical trial has found a psoriasis drug to be effective in treating the early stages of type 1 diabetes in children and adolescents. The new study has shown that Ustekinumab, an established immunotherapy that has been used to treat psoriasis since 2009, is effective in preserving the body’s...
  9. Andy

    Systemic antibody responses against gut microbiota flagellins implicate shared and divergent immune reactivity in Crohn’s disease and CFS 2024 Vogl+

    Very similar looking previous publications from the same group Systemic antibody responses against gut microbiota flagellins implicate shared & divergent immune reactivity in Crohn's Disease & CFS, 2024, Bourgonje Systemic antibody responses against human microbiota flagellins are...
  10. Andy

    Systemic antibody responses against gut microbiota flagellins implicate shared and divergent immune reactivity in Crohn’s disease and CFS 2024 Vogl+

    Full title: Systemic antibody responses against gut microbiota flagellins implicate shared and divergent immune reactivity in Crohn’s disease and chronic fatigue syndrome Abstract Background Elevated systemic antibody responses against gut microbiota flagellins are observed in both Crohn’s...
  11. Andy

    Resonant breathing improves self-reported symptoms and wellbeing in people with Long COVID 2024 Putrino et al

    Introduction: Long COVID involves debilitating symptoms, many of which mirror those observed with dysautonomia, and care must be taken with rehabilitation for autonomic dysfunction to avoid post-exertional malaise/post-exertional symptom exacerbation. Resonant breathing (breathing slowly at a...
  12. Andy

    Top Ten Tips Palliative Care Clinicians Should Know About Diagnosing, Categorizing, and Addressing Fatigue 2024 Robbins-Welty et al

    Well, until I magically know what constitutes a 'real' journal or not, I'll continue using my best but inevitably flawed judgement as to what papers are worth posting or not, especially when they are paywalled. Luckily the format of the forum enables other forum members to flag the, seemingly...
  13. Andy

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Trial By Error: Guardian Publishes Response to Boothby O’Neill Inquest from Ranking Member of the CBT/GET Ideological Brigades My heart sinks every time I see another ridiculous article from a member of the CBT/GET ideological brigades. They repeat the same bogus arguments that we’ve heard for...
  14. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 22nd July. Facebook: https://www.facebook.com/sci4me/posts/pfbid0pJ6u8r69gTnkDQ9eQL8Ntqj9wT5k2fboHD8Fwwqg2UgiYFKRGhQy1mqBX7wUDEYMl Mastodon: https://med-mastodon.com/@s4me/112868915785043492
  15. Andy

    Review Long COVID Is Not a Functional Neurologic Disorder 2024 Davenport, Tyson et al

    Abstract Long COVID is a common sequela of SARS-CoV-2 infection. Data from numerous scientific studies indicate that long COVID involves a complex interaction between pathophysiological processes. Long COVID may involve the development of new diagnosable health conditions and exacerbation of...
  16. Andy

    Gastroparesis, post-prandial pain, eating difficulties

    Once you have digested the meal, yes.
  17. Andy

    West Nile Virus-Induced Expression of Senescent Gene Lgals3bp Regulates Microglial Phenotype within Cerebral Cortex 2024 Arutyunov et al

    In mice. Abstract Microglia, the resident macrophages of the central nervous system, exhibit altered gene expression in response to various neurological conditions. This study investigates the relationship between West Nile Virus infection and microglial senescence, focusing on the role of...
  18. Andy

    Stress-Related Chronic Fatigue Syndrome: A Case Report with Positive Response to Alpha-Methyl-P-Tyrosine (AMPT) Treatment, 2024, Ljungström

    Now published. Abstract Chronic fatigue syndrome (CFS) is a heterogeneous disorder with a genetically associated vulnerability of the catecholamine metabolism (e.g., catechol O-methyltransferase polymorphisms), in which environmental factors have an important impact. Alpha-methyl-p-tyrosine...
  19. Andy

    Preprint Clinical and Diagnostic Features of Post-Acute COVID-19 Vaccination Syndrome (PACVS), 2024, Mundorf et al

    Abstract from published version, Abstract Post-acute COVID-19 vaccination syndrome (PACVS) is a chronic disease triggered by SARS-CoV-2 vaccination (estimated prevalence 0.02%). PACVS is discriminated from the normal post-vaccination state by altered receptor antibodies, most notably...
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