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I do still drink but only occasionally at social events. I’m not too bad if I have one glass but I still have worse PEM than I would have from doing the social event without drinking. I will have a couple offor special events birthday do, Christmas. I’m going to be in PEM for about 5 days...

@CovidSpice It would probably be a good idea to alert patient organisations to this letter I’m not sure about LC organisations but ME Organisations would have contacts in NHS DHSC they could raise it with. Lighting Process is referred to in the NICE guidelines 206 on ME/CFS and is not to be...

Pension day tomorrow so I’ve done mine :thumbup:

She’s from Workwell. I haven’t watched the video are both participants involved in talking about surgery or is Theresa Dowell talking about what Workwell do which is presumably the ‘other options’

There’s definitely a case to be made that with Layla Moran in the chair of that committee the chance of at least getting heard is much better than in the past. Taking it to a Select Committee is a step up from the backbench debates, if successful a step up in political pressure. true It can...

In the UK University of Leicester have published a couple of papers on visual issues , I think one of their postgrads joined the forum as well so definitely worth looking for.

Effectively a MUS clinic

The one that really frustrates me is if I’m in a social situation in conversation with two or three other people and I’m in the middle of a sentence but something makes the brain to mouth connection drop out and the second part just evaporates. I find myself interrupting and talking over people...

Ah magic all we need to do is change the description from chronic to long-term and that will give the hope that will make everything so much better. Lightweight thinking.

I don’t understand why people keep announcing that viruses have long term effects as some kind of revelation.

It’s like there’s a loose connection yes Ezzie. Showing my vintage reminds me of Trying to start a car with a manual choke and you’re going through the steps of pulling out the choke turning the key and pumping the accelerator but it still won’t start.

Hard to say if you are on the chubby side

Posts discussing an event involving Paul Garner have been moved to https://www.s4me.info/threads/paul-garner-on-long-covid-and-me-cfs-bmj-articles-and-other-media.15629/page-108

Oh gosh yes instigate security measures like cardboard cups for the coffee so there’s no rattling noise.

https://www.s4me.info/threads/me-cfs-post-doc-post-at-medical-university-of-vienna.40819/ ME/CFS Research post at Medical University of Vienna

We have started a thread this is a series of videos with Dr Binita Kane

Have they ever set out what is supposed to be involved in this “standard medical care”. Because as most of us know in real life standard medical care is about £0.

That’s quite a common schedule for me. I usually wake around 11 go to the loo take my paracetamol etc and go back to lying in bed for about an hour until the paracetamol takes the edge off

Oh dear @JohnTheJack sorry you came up against that - what ignorance on behalf of the scheme designers.

I’d say it’s hard to separate out cognitive from physical. Interaction with other people in person especially outside your home involves both types of exertion. When I was working from home would it have been sitting up at my table on my laptop or concentrating on telephone meetings that was...