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20h inactivity could be a fair number of the adult population over a boozy bank holiday

These psychosomatic people choose to read normal human reactions to difficult situations as “catastrophisation”. I choose to read it as common sense learning from experience.

More waste of people’s time and effort

Agreed still symptomatic, for me on a good day I am at the upper end of mild, good for me is being able to take part in a social activity out of the house such as watching my team play football or lunch with friends. eta probably should have said I once every couple of weeks for a big activity...

this also, if like me you’re not severe, taking the opportunity of talking about how you’re affected to explain that there are people who have severe/very severe ME

Snake oil university

:wtf::emoji_warning:

Also because the headline was about severity perhaps just using that word made a difference especially to anyone unaware that ME can actually be severe.

When you don’t live with stuff it goes off your radar. Also it’s like learning at school an element of repetition is necessary for information to sink in.

Don’t know how many they see? Also take into account materials/training for GPs IAPT provided based on PACE. Not inconsiderable impact

Thus proving there’s no difference between these corporate purveyors of CBT online as a panacea and ‘big Pharma’ CBT deflection tactics used just as antidepressant deflection tactics. Any old product as long as the patient can be fobbed off with it

The fact that for 10/15 years the NHS CFS clinics actively discouraged people with ME from engaging with patient organisations must have contributed to this situation.

One challenge for the strategy of convalescing is that with gradual onset there’s not an obvious starting point. I didn’t have one very debilitating viral illness at the time I started being generally unwell it was more increasing frequency of routine viral infections laryngitis, flu type...

Oh gosh flashbacks to being 9 or 10 and having a rather large rather persistent verruca on the ball of my foot. I had weekly visits to a foot clinic to have treatment with a rather copious amount of salycillic or whatever it’s called and hobbling round with a big dressing on. that seemed to...

And in the fine print they are saying they don’t work or they do something home based. They travel but have long rest breaks. Etc etc Ie not recovered back to pre illness level.

Sounds like it could be a lot of work.

I think the fifth point by @Hubris is very significant, if someone has no family to support them or whatever family they have are unsupportive they have the enormous burden of having to be your own advocate. Dealing with the bureaucracy of trying to get and retain benefits, social care...

Stating the obvious this is why the official guidelines matter, if this was here it could be challenged as not compliant with NICE.

Thread on the paper referred to https://www.s4me.info/threads/the-relationship-between-physical-activity-and-long-covid-a-cross-sectional-study-2022-wright-et-al.26779/

Just picked up on this no wonder he was spouting such tripe eta “chiropractic neurologist” :wtf: