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Not sure who is in editorial control of panorama these days but it’s unlikely to be the same people as 25 years ago so I don’t think any assumptions could be made. I think no assumptions could be made about any journalist or team’s attitude towards ME so that would need to be thoroughly explored.

I agree there’s a risk that certain “personalities” would be included. I’m not sure that they will be off the scene any time soon though so if it is worth doing I’m not sure there’s any point delaying. I don’t think there’s any less risk of them being involved if the topic was long covid given...

Should be aimed at channel 4 Dispatches just as much as Panorama

So around 4.5k dollars over a year. Someone must be making quite a bit of money there.

I guess it’s good to have it in a paper that pwME were motivated by altruism to support pwLC.

I thought the severe one looked to be still increasing somewhat. unsurprising if people are getting wrong advice about pushing limits.

I would imagine that the numbers are difficult to pin down for different reasons. some people may be experiencing remissions rather than completely recovering which of course nobody would be able to distinguish until the remission ends. People with LC/ their medics may not be considering that...

They might not respond of course but may be worth trying

@chillier this work seems to link up with the stuff you’re doing if you’ve got any energy for it maybe worth emailing them to discuss from PWME perspective??

I agree coaching could be beneficial as long as it’s not commercialised life coaching type approach. However for some people with more severe ME support from an advocate who could actively get involved in helping to sort out bureaucratic issues may be more appropriate. be interesting to see...

Yeah syndication of articles is pretty common anyway not just to outlets under same ownership.

Transference :whistle:

If it’s not set down somewhere in law This business of the appeal timeline being based on the notification of the grant rather than the public announcement appears to me to be open to a complaint of maladministration to the ombudsman.

Has that been reported somewhere?

The Peter principle comes to mind :whistle:

Yes but in the works can mean 2 weeks 2 months or 2 years so the distinction between shortly and at a later date is elastic. In my opinion a further written question is already justified.

@EndME NSKG?

Given ME Association experience and having achieved ASA rulings against such organisations in the past probably best referring it to them https://meassociation.org.uk/contact-me-association/

Except that Madan et various other psychosocial types Occupational Health Guidance on “CFS/ME” remains in place as the NHS guidance to employers (Occupational Health Advisers). Eg https://www.nhshealthatwork.co.uk/images/library/files/Clinical%20excellence/CFS_employers_leaflet.pdf And this is...

It does make sense @Trish your tweet that is - not the blocking