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The latest update has generated further signatures, total is now 11,627 showing there are potential supporters in the ME/CFS and Long Covid community who weren’t already aware of the petition. Please consider resharing the petition on your social media if you’re active there. Please also...

When we took part in training in my old job we used to be given “evaluation questionnaires” at the end which were commonly referred to as “happy sheets”. :whistle:

That is interesting

The links to MS CAB didn’t work for me but this one does https://emsp.org/projects/ms-cab/

Well put Peter

Do funders not have to do some kind of due diligence on whether the research proposal is a complete waste of money rehashing previous work.

8/9 years ago after I finally got diagnosed with CFS I was mild severity and trying to keep my job. I was on an extended gradual return to work and tried to increase my hours I got stuck at 15 hours a week and eventually that failed as I couldn’t maintain reliable attendance. After doing 5...

We only see 5 severe patients a year doesn’t wash at a national level does it how many hospital trusts are there.

I appreciate the way the coroner identified that the hospital hasn’t actually formalised the approach they now say is in place into a document setting out responsibilities snd that is not future proof because individuals move on with their knowledge. Having that down on paper at least offers...

That is really sloppy work from their web team

Pseuds corner

I’m booked in for my routine flu jab in a week at my GP surgery special Saturday opening just for jabs. Unlike last year they have now actually told people in advance that Covid jab will also be available. I had both together last year no problems so will go with one in each arm again.

Good point @bobbler re lack of action on that editor note. That is the bare minimum that is needed and as we all know could be done within a matter of minutes if the will was there. that to me is evidence of failure to meet charitable purpose of the organisation.

It is on Sky Comedy in the UK for those who have it

I meant the videos that were being discussed are they extracts.

Is there a link to this that isn’t through Xitter

It’s about doing a report to relevant authorities highlighting the need to address risk to prevent future deaths

Hopefully some of the LC people with ME/CFS diagnosis will contact them to say they just need to have links in their LC guidance to the ME/CFS guidance where relevant and the two guidance groups can work together to prevent duplication.

I have now emailed my MP I’ve said the DHSC need prodding about the implementation plan and asked her to try to speak in the margins to Andrew Gwynne. I also said to tell him to tell the NHS care of very severe needs urgent action.

I get carb cravings during PEM. Also some mild nausea.