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ME Research UK summary of paper: https://www.meresearch.org.uk/lived-experience-of-men-with-me-cfs/

From ME Research UK: Today is International Men’s Day. Read more about ME/CFS in men, and the challenges men with the disease face on our website: https://bit.ly/imd2023a

The Psychology of Chronic Illness: Making it Normal [Part 1: Development & Phases] Bateman Horne Center 11.7K subscribers 2,876 views 4 Mar 2020 BHC Education Part I. Development & Phases of Chronic Illness Chronic illness can create chaotic internal processes that can have profound...

From: Massachusetts ME/CFS & FM Association For our readers near New York City: Mount Sinai ME/CFS Blood Draw Study will do home blood draws Dr. Putrino at Mt. Sinai and Dr. Iwasaki at Yale have added an ME/CFS cohort to their study titled "Identifying the immunological signatures associated...

Wednesday November 1st Time Topic Speakers/Moderators 11:00 AM ET Opening remarks Vicky Whittemore, PhD NINDS 11:05 AM ET Oved Amitay, PhD Solve M.E. 11:08 AM ET Lived experience Perspective Hayla Sluss, PhD University of Massachusetts Session 1: Large data-sets and Genome Wide...

https://questions-statements.parliament.uk/written-questions/detail/2023-11-07/236 Chronic Fatigue Syndrome: Research Show full question Question for Department of Health and Social Care UIN 236, tabled on 7 November 2023 Question Daniel Zeichner Labour Cambridge Commons To ask the Secretary...

From: Dr. Marc-Alexander Fluks The German government has created an English web-page on post-corona therapy (including ME/CFS), BMG Long COVID initiative (BMG: Federal German Ministry of Health), https://www.bmg-longcovid.de/en Press release (Google translation from German to...

He is a patient or ex-patient from the Netherlands. He has a PhD in astrophysics. He has different searches which find news items and the like.

From =AZWTuFW6q6YIiN3wV_HDKtFS3ZK6YE0urGHosWXQ0Ckz8Xlz8DY_h9dtMusiaz8Tt724Uql_Dl7ZiPfGwEAeM4qIVR3rSO7n4sRgXzv7TqEJYkuP2FqrvgUOCAAqooVXaH3CGif4Ju3IeM3gnMbA3ExoP_Alq8geI4PyjbECv6cgdgTPyzCB1eYakfv7WBbcRuM&__tn__=R]-R']ME Association FB: I wasn't able to attend the APPG meeting yesterday as I am...

Raman research set to continue thanks to Ramsay Research funding from the ME Association November 16, 2023 https://meassociation.org.uk/2023/11/raman-research-set-to-continue-thanks-to-ramsay-research-funding-from-the-me-association/

The ME Association writes to Cheshire and Merseyside NHS about their out-of-date website information on ME/CFS November 17, 2023 https://meassociation.org.uk/2023/11/the-me-association-writes-to-cheshire-and-merseyside-nhs-about-their-out-of-date-website-information-on-me-cfs/

Medscape article: https://www.medscape.com/viewarticle/998581

The EMA said on Twitter it is recorded.

From: Dr. Marc-Alexander Fluks Source: British Association for CFS/ME (BACME) Date: November 16, 2023 URL: https://bacme.info/ BACME Severe ME/CFS Shared Clinical Practice Guide -------------------------------------------------- The latest edition of guidelines for clinicians managing...

DecodeME: "We currently have around 4,000 spit kits that have been sent out and not yet returned."

Now published: https://bmcmededuc.biomedcentral.com/articles/10.1186/s12909-024-05610-z Preprint: https://www.researchsquare.com/article/rs-3552374/v1 What are medical students taught about Persistent Physical Symptoms? A scoping review of the literature Nagel Catie1 Email Queenan Chloe1...

Peer reviews: Review 2: "Brain-targeted Autoimmunity is Strongly Associated with Long COVID and Its Chronic Fatigue Syndrome as Well as Its Affective Symptoms" Reviewers were overall positive in evaluating this preprint, finding it reliable to strong. Reviewers thought it was overall...

Knowsley Clinical Commissioning Group Commissioning Policy https://www.cheshireandmerseyside.nhs.uk/media/nwdbpcvq/commissioning-policy-knowsley-september-2023.pdf CFS policy for inpatient care is discussed on page 26-27

From Workwell Foundation: Workwell teams up with @statwearable Read about our new collaboration examining whether cerebral blood flow is reduced during post-exertional malaise and if this metric helps explain the worsened orthostatic symptoms many report while in PEM/PESE...