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Merged thread Vitality 360 Conference on Fatigue (June 15, 2023) Vitality 360 Conference, Thursday 15th June 2023, 09:30-16:00 https://www.vitality360.co.uk/fatigue2023 https://www.vitality360.co.uk/fatigue2023-schedule https://www.vitality360.co.uk/fatigue-event-speakers

Thread Equally relevant to ME/CFS which does get a mention

Not sure this person is a medical doctor but not sure what other thread to post it to.

Press release: https://www.ncl.ac.uk/press/articles/latest/2023/05/longcovidfatigue/

The largest media outlet that has used it seems to be the Independent newspaper in the UK. Put the following into a search engine and you should find most or all articles that mention it: "Dr Anand Patel" "Covid has made ME more" A version that is freely available is here...

(Germany) “Bundestag Health Committee supports ME/CFS care and research” [on May 10] https://www.meresearch.org.uk/bundestag-health-committee-supports-me-cfs-care-and-research/

I only skimmed it but I dislike the public being told lots of doctors don’t believe in it and the like. As that can lead other people to doubt it, I feel.

From: Dr. Marc-Alexander Fluks May 11, the University Leuven 'Continuing Education Programme' Pentalfa in Belgium will organize a free online symposium (in Dutch) on Post-Covid, including ME/CFS, for MDs. Date: May 11, 2023 Time: 18:00 UTC URL: http://www.pentalfa.be WebTV...

https://www.miningjournal.net/life/2023/05/health-matters-52/ DR. CONWAY MCLEAN Journal columnist Looks a bit annoying on a quick skim

The fact that an ME charity funded the development may mean it will be harder to argue they are less suitable in the future. ETA: And it’s likely the MEA will say something positive about them when they are published. It’s somewhat natural for a charity to want to promote their work. It will...

Saturday, May 20: Caregiver Support Call (for caregivers of people with ME (Mylagic Encephalomeylitis), Long Covid and Associated Conditions) 3:30 PM EDT/8:30 PM Great Britain & Ireland Find the time in your time zone here...

May 18 #MEACTION GEORGIA SUPPORT CALL https://www.meaction.net/event/meaction-georgia/2023-05-18/ People around the world are welcome. 1 PM EDT/6 PM in Great Britain & Ireland Find the time in your time zone here...

Lunch & Learn – Virtual Event organised by the Bateman Horne Center Thursday May 18th Topic: Making Household Tasks Easier 11:30 am MDT/6:30 PM in Great Britain & Ireland Find the time in your time zone here...

This two-page letter (or one page if you exclude the references) might be worth circulating https://mecfscliniciancoalition.org/ MESSAGE FROM THE COALITION ON LONG COVID: Since 2020, we’ve been seeing people with Long COVID whose symptoms overlap with ME/CFS. We recommend you consider ME/CFS...

Topic for this (May 16) meeting: Crash Survival and Pacing Free, professionally-facilitated online support group on Tuesday, May 16 Time: 3 PM EST/8 PM in Great Britain & Ireland Find the time in your time zone here...

I wasn’t sure where to post this. “Will, who plays off a handicap of five, is set to play 100 holes at the Bridport and West Dorset Golf Course on Wednesday, 31st May for two great causes – the ME Association’s Ramsay Research Fund and Opal Webster-Philp’s South Coast-based ME/CFS Alliance.”...

I can’t remember whether this information re: HANDI guidelines is new or not

I hope someone does a trial of a lower dose. Not sure how comfortable I would be taking that dosage (though I’m no melatonin expert).

Another study by the same Dutch team found: “Table 3 shows the baseline characteristics of the ME/CFS patients with a normal heart rate and blood pressure response and ME/CFS patients with POTS. Patients with POTS had a shorter duration of disease and were younger (both p<0.0001).”...

Another group also found POTS prevalence decreased with time in long Covid: “Long-Haul COVID Patients: Prevalence of POTS Are Reduced but Cerebral Blood Flow Abnormalities Remain Abnormal with Longer Disease Duration” https://pubmed.ncbi.nlm.nih.gov/36292552/