Search results

"Exclusion criteria ... Predominant diagnosis of chronic fatigue syndrome (comorbid diagnosis is acceptable, as long as FND is the predominant difficulty)."

Abstract Introduction Functional neurological disorder (FND) refers to an involuntary loss of control over and/or aberrant perception of the body. Common presenting symptoms are functional (non-epileptic) seizures, and functional motor disorder, for example, walking difficulties, weakness or...

Protocol See next post for the Trial Report Full title: Randomised, controlled, open-label pragmatic trial evaluating changes in functional exercise capacity after primary care PUlmonary REhabilitation in patients with long COVID: protocol of the PuRe-COVID trial in Belgium Introduction Long...

News in Brief posts for w/c 29th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid0aye7QNzFyocpSm9aRxow6EBt1AoZMqFopXC9ZGSWHdUocxDShWGSVWke6Qc8GA1sl Mastodon: https://med-mastodon.com/@s4me/110485761412071113

TG on Twitter. If this succeeds then we might have a better route to complain about doctors who make false statements about ME/CFS on social media. "The UK General Medical Council has adopted an antiquated position on doctors who spread false & misleading information on social media. This...

Recent update from Dianna Cowern (Physics Girl on YouTube) "It’s been nearly 5 months of being completely bedridden. I’ve made very little progress. I can still barely move, or think or talk. I want to be out in the world living a life. My body hurts. But my heart hurts more. I wish I had a...

This person with LC on Twitter has summarised the recent podcast with Prusty where his theory was discussed.

"Three to four months after the onset of acute COVID-19, a senior psychiatrist assessed the following rating scales: (a) the 12-item Fibro-Fatigue (FF) scale to assess chronic fatigue and fibromyalgia symptoms" "The mean HAMD, HAMA, and FF scores (23.6 ± 5.6; 25.4 ± 8.6; and 30.9 ± 10.1...

Thought this looked an interesting example of how charities and a national funding agency can collaborate on this sort of project. "We want to produce the clinical and economic data that could help make the case for blood biomarker implementation in a healthcare setting in the UK. Duration: Up...

Also available on the APPG website, https://appgme.co.uk/meetings/annual-general-meeting-2023/ and also available via AfME's website, which also has a template email for inviting MPs to the next meeting, https://www.actionforme.org.uk/news/invite-your-mp-to-the-next-appg-on-m.e.-meeting/

May News in Brief posted to Reddit. Copy and paste link below https://www.reddit.com/r/cfs/comments/13xcak2/the_news_in_brief_posts_for_may_2023_which_cover/

"Physician Binita Kane, a lung specialist in Manchester, England, and an Honorary Senior Lecturer at the University of Manchester’s School of Biological Sciences, has been outspoken on the subject of long Covid in children. Her passion about the issue has been fueled by her own daughter’s...

Getting it Right: Addressing Myths about the 2021 NICE Guideline for ME/CFS "Earlier this month, on World ME Awareness Day, I spoke at the Hope 4 ME & Fibro NI conference in Belfast. The event was hosted in the Stormont Parliament Buildings by Alliance Party MLA, Paula Bradshaw. The title of...

Introduction: During a standard 70-degree head-up tilt test, 90% of adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) develop an abnormal reduction in cerebral blood flow (CBF). A 70-degree test might not be tolerated by young ME/CFS patients because of the high incidence...

Thanks, my question was more coming from the point that I've seen people taking these figures as indicating that only approx 21k of the entire English ME/CFS patient population have a diagnosis at all, and I was trying to figure out why that would, or could, be an inaccurate interpretation.

The headline, "Only one in ten (21,927) of the estimated 250,000 patients are currently recorded as having ME/CFS in the medical system.", is based on "The number of patients on record with a diagnosis of ME/CFS and receiving care was indicated to be 21,927 people in total. This is likely...

Abstract Chronic fatigue is a frequent complaint, expressed at all levels of the healthcare system. It is perceived as disabling in a high proportion of cases, and internists are frequently called upon to find “the” cause. The etiological diagnostic approach of an unexplained state of fatigue...

I assume you are thinking about what is discussed in this thread, FOI requests (to NICE, and NHSE&I): Materials pertinent to the decision by NICE to delay publication of the final guideline

Well, my comment is I'm confused about what you are referring to. To my knowledge, the forum has never made any Freedom of Information requests, and most likely doesn't have the capacity to do so unless somebody steps forward to coordinate and progress any such effort.

Published papers thread for w/c 22nd May Facebook: https://www.facebook.com/sci4me/posts/pfbid0RAeoWbheTL6XxJ2kJDdoqezBKdW2SwxqoXH24HgArHUrVeTcYCrZpm4e5gdqfd7jl Mastodon: https://med-mastodon.com/@s4me/110450881815138333