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  1. Andy

    Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings Report - Action for ME, May 2023

    From the Times article "Only 28 per cent of NHS trusts and integrated care boards (ICBs), the bodies responsible for health and care services in a local area, have implemented the Nice guidelines published two years ago." "Only one in five people with ME have a personalised care and support...
  2. Andy

    Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings Report - Action for ME, May 2023

    What is available outside of the paywall "Thousands of patients with a debilitating condition are being failed by NHS hospitals ignoring treatment guidelines, a report has said. In 2021 the National Institute for Health and Care Excellence (Nice) produced guidance on how patients with myalgic...
  3. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 22nd May Facebook: https://www.facebook.com/sci4me/posts/pfbid02DRj6Fk2ge4GU3bfHh5JzVa5jUMxDFnwhNTvcpg6Fg1xwTgZKv4wMnT84vuzeAAhGl Mastodon: https://med-mastodon.com/@s4me/110446141459248180
  4. Andy

    Influence of CFS Codiagnosis on the Relationship between Perceived and Objective Psychoneuro-Immunoendocrine Disorders in Women w/FM, 2023 Otero et al

    Full title: Influence of Chronic Fatigue Syndrome Codiagnosis on the Relationship between Perceived and Objective Psychoneuro-Immunoendocrine Disorders in Women with Fibromyalgia Abstract Although the predominant symptom in fibromyalgia (FM) is muscle pain, and fatigue in chronic fatigue...
  5. Andy

    Blog: The Science Bit by Brian Hughes

    Trial By Error: Psychologist Brian Hughes Discusses His New Book, “A Conceptual History of Psychology” "My friend and colleague Brian Hughes, a professor of psychology at the University of Galway in Ireland, recently published his latest book—“A Conceptual History of Psychology: The Mind...
  6. Andy

    Anxiety in children with CFS/ME, 2009, Crawley, Hunt and Stallard

    Correction to: Anxiety in children with CFS/ME, 2023 Following a report of a publications review jointly commissioned by the Health Research Authority and the University of Bristol, the authors would like to correct the following element of the ethics statement provided in the original article...
  7. Andy

    Anxiety in children with CFS/ME, 2009, Crawley, Hunt and Stallard

    Anxiety symptoms are commonly described in children with chronic fatigue syndrome or myalgic encephalopathy (CFS/ME) but to date there has been little information on the type of anxiety children experience or the relationship between anxiety and school attendance, disability or fatigue. The...
  8. Andy

    Service users’ and parents/carers’ experiences of a paediatric chronic fatigue service: A service evaluation, 2023, Hartley and Purrington

    The references and author detail make it clear that the authors are clearly on the psych side of things. "Jack Purrington, Clinical Psychology Team, Chrysalis Associates, Bradford Grantham Sheffield and York, UK. Emails: jack.purrington@chrysalisassociates.org"
  9. Andy

    Service users’ and parents/carers’ experiences of a paediatric chronic fatigue service: A service evaluation, 2023, Hartley and Purrington

    Objectives This service evaluation explored the experiences of families receiving care in a paediatric chronic fatigue service. The evaluation aimed to improve service provision across paediatric chronic fatigue services more widely. Methods Children and young people aged 7–18 years (n  =  25)...
  10. Andy

    The enteric nervous system relays psychological stress to intestinal inflammation, 2023, Schneider et al

    In mice. Highlights Psychological stress leads to monocyte-mediated exacerbation of gut inflammation Chronic glucocorticoid signaling drives the effect of stress on IBD Stress induces inflammatory enteric glia that promote monocyte recruitment via CSF1 Stress provokes transcriptional...
  11. Andy

    Functional neurological disorder is common in patients attending chronic pain clinics 2023 Mason, McWhirter, Carson, Stone et al

    Background Chronic pain is a common comorbidity in those with functional neurological disorder (FND), however the prevalence and characteristics of FND in those with chronic pain is unknown. Methods A retrospective electronic records review of consecutive new patients attending a chronic pain...
  12. Andy

    Maintained imbalance of triglycerides, apolipoproteins, energy metabolites and cytokines in long-term COVID-19 syndrome patients 2023 Berezhnoy et al

    Background: Deep metabolomic, proteomic and immunologic phenotyping of patients suffering from an infection with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) have matched a wide diversity of clinical symptoms with potential biomarkers for coronavirus disease 2019 (COVID-19)...
  13. Andy

    Effects of whole-body cryotherapy and static stretching are maintained 4 weeks after treatment in most patients with CFS 2023 Kujawski et al

    Abstract In the previous study, whole-body cryotherapy (WBC)+static stretching (SS) has been shown to reduce the severity of some symptoms in Chronic Fatigue Syndrome (CFS) noted just after the therapy. Here we consider the effects of treatment and explore the sustainability of symptom...
  14. Andy

    Functional tic-like presentations differ strikingly from Provisional Tic Disorder 2023 Arbuckle et al

    Background: Recent years have seen a dramatic increase in new “tic” cases in teens and young adults. These individuals often present with fulminant onset of symptoms not commonly seen in Tourette syndrome (TS) and are often diagnosed with Functional Neurological Symptom Disorder (FND-tic)...
  15. Andy

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Presentations from the Symposium available here, http://mecfs-research.org/mecfs-symposium2023/ Presentations from the Conference available here, http://mecfs-research.org/mecfs-conference2023/
  16. Andy

    Protocol Psychological Adaptiveness to Critical Events (PACE), 2023, University of Oslo

    Well, if they knew about 'our' PACE trial, and they agreed with our opinion of it, then yes, it would be silly of them to re-use it, but I would guess they are probably blissfully unaware of it.
  17. Andy

    UK: ME Association: Count ME In [survey]

    The ME Association on Twitter. "Support the ME Association's #CountMEin campaign - please keep sharing, thank you! A major campaign to reach people living in the UK, Channel Islands, or Isle of Man, who think they might be affected by symptoms – or who have a diagnosis – of #MECFS or #LongCovid "
  18. Andy

    Do labels matter? Implications of ongoing symptomatic chronic illnesses labeled as conventional diagnoses vs. functional somatic syndromes 2023 Smith

    Objective A consideration of chronic illness according to illness labels that are medically understood as opposed to being outside of medical understanding may reveal unique differences in how individuals understand their illness and how such lay understandings relate to health-related quality...
  19. Andy

    The association between the number of symptoms and the severity of Post-COVID-Fatigue after SARS-CoV-2 infection... 2023 Schmidbauer et al

    Full title: The association between the number of symptoms and the severity of Post-COVID-Fatigue after SARS-CoV-2 infection treated in an outpatient setting Background Post-COVID-Fatigue (PCF) is one of the most reported symptoms following SARS-CoV-2 infection. Currently, research on...
  20. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    From ME/CVS Vereniging, "Update 5/23/23: ZonMw has now informed us that our WOO [freedom of information] request is extensive and that more time is needed. ZonMw will use an external law firm to consult with the ME/CFS Association about prioritizing the handling of our request. To be...
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