From the Times article
"Only 28 per cent of NHS trusts and integrated care boards (ICBs), the bodies responsible for health and care services in a local area, have implemented the Nice guidelines published two years ago."
"Only one in five people with ME have a personalised care and support...
What is available outside of the paywall
"Thousands of patients with a debilitating condition are being failed by NHS hospitals ignoring treatment guidelines, a report has said.
In 2021 the National Institute for Health and Care Excellence (Nice) produced guidance on how patients with myalgic...
News in Brief posts for w/c 22nd May
Facebook: https://www.facebook.com/sci4me/posts/pfbid02DRj6Fk2ge4GU3bfHh5JzVa5jUMxDFnwhNTvcpg6Fg1xwTgZKv4wMnT84vuzeAAhGl
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Full title: Influence of Chronic Fatigue Syndrome Codiagnosis on the Relationship between Perceived and Objective Psychoneuro-Immunoendocrine Disorders in Women with Fibromyalgia
Abstract
Although the predominant symptom in fibromyalgia (FM) is muscle pain, and fatigue in chronic fatigue...
Trial By Error: Psychologist Brian Hughes Discusses His New Book, “A Conceptual History of Psychology”
"My friend and colleague Brian Hughes, a professor of psychology at the University of Galway in Ireland, recently published his latest book—“A Conceptual History of Psychology: The Mind...
Correction to: Anxiety in children with CFS/ME, 2023
Following a report of a publications review jointly commissioned by the Health Research Authority and the University of Bristol, the authors would like to correct the following element of the ethics statement provided in the original article...
Anxiety symptoms are commonly described in children with chronic fatigue syndrome or myalgic encephalopathy (CFS/ME) but to date there has been little information on the type of anxiety children experience or the relationship between anxiety and school attendance, disability or fatigue.
The...
The references and author detail make it clear that the authors are clearly on the psych side of things.
"Jack Purrington, Clinical Psychology Team, Chrysalis Associates, Bradford Grantham Sheffield and York, UK. Emails: jack.purrington@chrysalisassociates.org"
Objectives
This service evaluation explored the experiences of families receiving care in a paediatric chronic fatigue service. The evaluation aimed to improve service provision across paediatric chronic fatigue services more widely.
Methods
Children and young people aged 7–18 years (n = 25)...
In mice.
Highlights
Psychological stress leads to monocyte-mediated exacerbation of gut inflammation
Chronic glucocorticoid signaling drives the effect of stress on IBD
Stress induces inflammatory enteric glia that promote monocyte recruitment via CSF1
Stress provokes transcriptional...
Background
Chronic pain is a common comorbidity in those with functional neurological disorder (FND), however the prevalence and characteristics of FND in those with chronic pain is unknown.
Methods
A retrospective electronic records review of consecutive new patients attending a chronic pain...
Background: Deep metabolomic, proteomic and immunologic phenotyping of patients suffering from an infection with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) have matched a wide diversity of clinical symptoms with potential biomarkers for coronavirus disease 2019 (COVID-19)...
Abstract
In the previous study, whole-body cryotherapy (WBC)+static stretching (SS) has been shown to reduce the severity of some symptoms in Chronic Fatigue Syndrome (CFS) noted just after the therapy. Here we consider the effects of treatment and explore the sustainability of symptom...
Background: Recent years have seen a dramatic increase in new “tic” cases in teens and young adults. These individuals often present with fulminant onset of symptoms not commonly seen in Tourette syndrome (TS) and are often diagnosed with Functional Neurological Symptom Disorder (FND-tic)...
Presentations from the Symposium available here, http://mecfs-research.org/mecfs-symposium2023/
Presentations from the Conference available here, http://mecfs-research.org/mecfs-conference2023/
Well, if they knew about 'our' PACE trial, and they agreed with our opinion of it, then yes, it would be silly of them to re-use it, but I would guess they are probably blissfully unaware of it.
The ME Association on Twitter.
"Support the ME Association's #CountMEin campaign - please keep sharing, thank you! A major campaign to reach people living in the UK, Channel Islands, or Isle of Man, who think they might be affected by symptoms – or who have a diagnosis – of #MECFS or #LongCovid "
Objective
A consideration of chronic illness according to illness labels that are medically understood as opposed to being outside of medical understanding may reveal unique differences in how individuals understand their illness and how such lay understandings relate to health-related quality...
Full title: The association between the number of symptoms and the severity of Post-COVID-Fatigue after SARS-CoV-2 infection treated in an outpatient setting
Background
Post-COVID-Fatigue (PCF) is one of the most reported symptoms following SARS-CoV-2 infection. Currently, research on...
From ME/CVS Vereniging,
"Update 5/23/23:
ZonMw has now informed us that our WOO [freedom of information] request is extensive and that more time is needed. ZonMw will use an external law firm to consult with the ME/CFS Association about prioritizing the handling of our request. To be...
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