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'First they came for the communists...' First they came for the disabled children, actually. ––––––– @adambeyoncelowe, @Keela Too

Enough said.

Holidays, of any form, did nothing for me. :thumbsdown:

Or that patients are having to pay more attention to how they move because of organic pathology affecting movement, and that because, among other possible reasons, it also involves pain the emotional centre is also activated.

cognitive, somatic, and behavioral symptoms (CSBS) Medicine by acronym.

Very much appreciating your input here, @hibiscuswahine It is important that we don't write off all of psychiatry/psychology on the basis of our experience with them. From my experience the vast majority of ME patients are not anti-psych in any way. But we are very firmly anti-substandard...

We have a long way to go, people. :grumpy:

:laugh:

Indeed. There is an important distinction between a disease process being in place and active, and it reaching the level of sufficient harm or consequences where the symptoms become expressed at a clinical level. I have osteoarthritis, currently with a moderate level of symptom expression...

Translation: 'It is not our fault the rest of you are idiots.' The real problem is that we understood all too clearly, through hard earned lessons, what they meant by CBT & GET, and the consequences of it.

Patients described the need to accept disease-imposed limitations and life adjustments. As we have been saying for decades.

Negative, as defined by...?

And tinnitus is exactly the same as having ME.

Supplementary Result: Wearing some form of actimeter for an extended period does not seem to be a burden for patients.

Prof Crawley. Specialty: superficial paternalistic infantilising intrusive micromanagement, especially if you don't need it.

And, sadly, completely unsurprising.

In which case they are not 'functional' in any meaningful sense of the word as originally used in 'functional disorders', and it should be dropped, along with all the assumptions and inferences associated with it. If there is explanatory organic pathology, there is no 'functional'.

Stop me if you have heard this story before.

Very good. :thumbup: ––––––– Serfaty et al [2019] add ‘our results suggest that resources for a relatively costly therapy such as IAPT-delivered CBT should not be considered as a first-line treatment for depression in advanced cancer. Indeed, these findings raise important questions about the...

Is there any flower name that could work with 'Millions Missing'? EDIT: For example, the 'Million Bells' Calibrachoa species.