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Do we have information on what variety of CBT was used. If it was effectively a trial of supportive CBT versus being told to exercise, then it's not surprising the CBT group did better on questionnaires.

Semi serious. These sort of articles are common and superficial and a mix of a few words from a doctor, quackery and bits gleaned from the internet.

Looks to me like a machine generated clickbait article.

Do you think this might have been partly due to wariness about the CMRC, given that in its early years it seemed to be trying to be inclusive of the BPS people. With the chair Steven Holgate, if I remember correctly, consulting Wessely over who should be invited and Crawley as vice chair. pwME...

I had a quick look at the Cochrane review of psychological therapies for pain. The outcome measures were all subjective, ie questionnaires. It only found evidence of small improvements with CBT and none with BT or ACT. I would interpret that as CBT being more focused on changing unhelful...

Copy of tweets I saw a patient and diagnosed them with a common condition. However, I was wrong. How did I know I was wrong? Because the treatment wasn’t helping and the patient was feeling worse. 1/ I did some tests to evaluate for other conditions. They were all normal. I began trying to...

Hi Frenchguy. I'm sorry to hear you are so sick with a combination of ME and MS. What awful bad luck to get both diseases. I don't have anything useful to say. I just wanted to offer my sympathy and hope that your MS doctors can find medication that will help.

It's a discussion on an MS society forum from 2016 about these articles: The Misleading Research at the Heart of Disability Cuts | HuffPost UK Politics 1 It links to a longer report: http://www.centreforwelfarereform.org/library/by-date/in-the-expectation-of-recovery.html Including this comment:

Copies of Frances Ryan's tweets: From Rosie Jones doc to the ME research, I know there’s many issues right now that some in the disabled community feel passionately about. There’s still few staff disabled journalists so pitching as a freelancer can be a vital way to get voices heard. So here’s...

A post making comparisons with Covid minimisers pushing herd immunity has been moved to The biology of coronavirus COVID-19 - including research and treatments Posts have been moved to a new thread: Advice for freelancers on pitching articles to newspapers, by Frances Ryan, Guardian journalist

I think multiple cumulative triggers effect can probably only be studied in longitudinal studies using continuous real time data from wearables, and apps to record symptoms and cognitive activity. As wearables get more sophisticated they can do some biochemical readings too like the thing...

My problem is I often push myself to my limit and rarely know until it's too late whether I've triggered PEM. One could theoretically advise me to stop pushing to my limit, but life's not like that for a lot of us I think. Part of the problem from my experience also is that PEM is most often a...

I agree. My concern is about research that only looks at the immediate effect in the few hours after the exertion, and doesn't follow up to see if it has triggered PEM, yet they say they are researching PEM.

I think that's problematic. By all means research the regular fatiguability after any activity that leads to symptoms right after exertion, but I don't think that can be assumed to be part of PEM unless it's followed over subsequent days by delayed PEM. I found this video helpful in...

Even the well intentioned researchers are still mixing up fatiguability with PEM as most of us on this forum understand it. It's not helped by the fact that it's not well described on some of the diagnostic criteria.

Sorry, my mistake I mis read the date given of June 23 as meaning 2023

Published in an alt med journal. p value just over 0.05, so not statistically significant. Huge droppout rate. Started with 50 in each group. After 3 months when final data was collected they were down to 25 in the AIR group and 17 in the control group. And the control group were promised free...

Reduced diversity and altered composition of the gut microbiome in individuals with myalgic encephalomyelitis/chronic fatigue syndrome Abstract Background Gastrointestinal disturbances are among symptoms commonly reported by individuals diagnosed with myalgic encephalomyelitis/chronic fatigue...

Thread on a study mentioned in the article Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue..., 2023, Guo,Lipkin et al (not sure if this is the right one. They don't give names or references) Reduced diversity and altered...

Starts of OK in describing ME/CFS by distinguishing it from chronic fatigue, but then gets lots wrong too, not mentioning PEM by name and underplaying it as increased exhaustion. And then this: