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It’s very frustrating because I know I am/was intellectually capable of understanding. But my cognitive fatigue isn’t stable, it has highs and lows, so I guess if I wait for a “good bit” to come along, I can make progress.

No I was specifically thinking of learning biochemistry, or law/legal arguments. When I worked I attended court/prepared responses etc, now I can’t learn new legal concepts, or recall old ones well.

I find at some later point I can discuss the issue, or deal with it better. This is a nightmare if there’s a deadline.

I have experienced these “loops” but only on a very small scale. I tend to recognise it and distract myself when I notice it happening. Which is the weird thing - being able to acknowledge your cognitive dysfunction and think about it. Are there any other patient groups who do this?

It’s one more ME paradox Think about what you need to do/don’t overthink and use all your energy Don’t overdo it/don’t do nothing

I think it’s an executive function problem compounded by a lack of memory. At times I struggle with double-negatives. Luckily I can intellectually understand the issue. At times I get lost in them as they are four things at once - the thing, the negative of the thing, and another thing with the...

No, I think some humans would have her experiences and behave differently. Of course, some will behave the same.

It’s the proselytising that’s the weird part. And the very black and white thinking that x is right, y is wrong in all cases. Also this idea that ME charities or communities are “keeping people sick” or somehow preventing recovery. It’s all very cult/conspiracy/evangelical type of thinking, no...

Apparently it’s “made very clear” that this isn’t suitable for physical injuries (I read the Reddit) but also it seems that physical injury doesn’t matter because scans show lots of things, many of which don’t hurt. There was talk of a Facebook group which sounds like the Wild West, where MRI...

I find cults, and their cousins grifters and MLMs fascinating. That’s the kind of psycho-social I’m interested in.

I didn’t know “emeritus professor” meant someone was infallible!

My RHR is affected regularly by other issues, it soars then drops, no matter what I’m doing/feeling

I thought the ME Community was her community for 14 years. She does realise the ME community isn’t a homogeneous blob?It’s just people with something in common.

I am impressed, dismayed and fascinated! Amazing research skills. A tentacle running from insurance companies to an app to an ex-MEA fundraiser. It seems Fiona made friends with Paul a little while ago. Interesting to see where this goes next. A side issue - it feels to me somewhat...

Thanks, I don’t Facebook like I don’t tweet!

I’m using visible plus - I wish they had a forum on their site for people to chat about how they’re getting on! I’ve been devastated at how much I overexert, I’m so far away from being able to “rest” enough, just due to the usual activities of daily living.the weekly or fortnightly trip out to...

Other MEA fundraising https://www.justgiving.com/fundraising/1millionstepsforme

I had googled as a result of the Co-signed letter by Fiona and Paul Garner, in response to George Monbiot’s excellent opinion column 12 March 24. I saw she’d been involved in fundraising for the MEA not too long ago (if this is the same person)...

You can edit these days, thanks to Elon. You could always delete the tweet, which would leave the responses! They didn’t disappear with it.

The only way to “preserve” is to enter the link at the time into a web archive site, or to screenshot. Yes, twitter is full of people who amend their tweets after the fact. This leaves the people replying looking a bit silly and the original tweeter looking much better.