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  1. Keela Too

    Janet Dafoe - The Whitney Plea

    If so that's good to hear. And perhaps appeals in two different ways at the same time.
  2. Keela Too

    Janet Dafoe - The Whitney Plea

    The video is okay in my mind. It's motive seems genuine, and although not entirely as I would have done it, I retweeted it this morning after watching it. I didn't notice any Jesus reference (but haven't watched again to look for it). I agree that linking the Whitney plea video with the...
  3. Keela Too

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    The worry about them being quiet, is that they may feel the scoping document actually gives them sufficient scope to work towards their own ends? Edit, But not being there, I don’t know know how the feel of the day went
  4. Keela Too

    Michael Sharpe skewered by @JohntheJack on Twitter

    It was just such a condescending playground type of reply, I couldn’t let it sit there without saying something. Agree, I don’t expect it to change his views. Yet I hope the comment highlights the distain with which he regards all of us. He keeps trying to come across as Mr...
  5. Keela Too

    Michael Sharpe skewered by @JohntheJack on Twitter

    Sorry couldn't help myself:
  6. Keela Too

    PACE trial manuals no longer accessible

    Oh! So only some of the documents are still available. Meh. Too late to think now, I'll look again tomorrow. Did they ONLY put up the therapist manuals for each of the four trial arms? But not the other documents? It would seem daft not to have all available. Gah.
  7. Keela Too

    The ME Show

    Just catching up with this project now and I have to say! Wow, BRILLIANT work Gary! You've got just the right voice for this. All works really well. Keep it up.
  8. Keela Too

    PACE trial manuals no longer accessible

    Yes. I sent him a thank you... Actually two. One when he said he'd look into it, and one when he reported back that they were online again.
  9. Keela Too

    PACE trial manuals no longer accessible

    Apparently now back online. I haven't checked yet.
  10. Keela Too

    PACE trial manuals no longer accessible

    Thank you @BruceInOz -very useful. Seems Prof Sharpe wasn't aware they were now behind a login. He says he's going to ask QMUL.
  11. Keela Too

    Esther Crawley's contribution to #MEawarenessweek

    Disgusting. I would say it is vital information, and no doubt the figures are "not available" simply because they know it would be a scandal!
  12. Keela Too

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    My "YES" was in relation to Snowdrop's comment on the psychiatrists themselves. Ie that they really should stop accusing us of stuff, when they seem rather over-attentive themselves.
  13. Keela Too

    Esther Crawley's contribution to #MEawarenessweek

    Wonder would a MP be able to get further??
  14. Keela Too

    Esther Crawley's contribution to #MEawarenessweek

    I'm not familiar with how to do FOI requests, but it might be time to ask: How many patients entering the Bath clinic with ME, ME/CFS, CFS/ME or CFS as their diagnosis on entry, get re-diagnosed with other conditions? And of those, how many are therefore declared free of their initial...
  15. Keela Too

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Ho hum... they are coming at us from all angles. By giving as many people CFS/ME diagnoses as possible so they can have lots of people saying - "Oh yes I had ME and now I'm running marathons again". What a ploy! @dave30th I'm sure you've been alerted to this, and I'm sure you also have far...
  16. Keela Too

    Michael Sharpe skewered by @JohntheJack on Twitter

    Either that, or he knows full well the score, and it tweeting such statements in an attempt to demonstrate that he has no guilty conscience on these matters. So he acts as if he believes himself, that way he believes he looks like a "good guy" really. There is no way he can admit out loud...
  17. Keela Too

    PACE and 'Wessely school' 'research' - is it Cargo Cult Science?

    Not sure I understand your comment. I was wondering if they know full well that their “science” is weak, but still choose to spin it as if it were top rate. I cannot see how they could fail to understand the flaws now so many have been pointed out. Other moves they make clearly suggest they...
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