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Regarding written communication, surveys and the like - Choice of font, text indentation, line spacing, use of colour can make a document easy to interpret or render it incomprehensible. When drawing up a survey or questionnaire then allowing members of the target audience input in layout can...

As far as I know, no, it hasn't been asked. At least not of our community. I think this is because it is only fairly recently that there is an acknowledgement of the depth and breadth of cognitive dysfunction. For at least the first 1½ decades of my illness I had to fight against not only...

I use 2800ppm and am planning to switch to 5000ppm once the current tube runs out. I don't know if it's just me, a subset of ME patients or what but gastric problems mean I need to eat little and often. I eat fruit but as a separate snack and not after a meal. That means my enamel is under...

Nope. I don't think so. It may be that a dentist who doesn't really understand the issues might think they are from when they're seen at the dental practice. Already wiped by the trip to get there Jaw muscles fatigue much mire rapidly than normal May already be struggling from sitting upright...

As someone with gut issues from early childhood I can honestly say that looking at my diet, making long term changes to what I ate made a massive difference. Sure, at times as a young adult I was fuelled by caffeine & nicotine, but generally my diet was probably not outrageously bad. I also...

I've skimmed it. Nice to see the problem being analysed from this angle as opposed to...... you are focussing on your symptoms and this is distracting you...... You are subconsciously trying to get out of dealing with whatever.... Makes a change from the usual guff.

I have a Garmin Vivosmart and I sometimes miss alerts because the buzz/vibration feels very similar to this symptom.

Had to go to the chemist today. Manual doors and no hand sanitizer freely available to use - you have to buy a bottle. The little supermarket has auto doors, the cafe has bottles of sanitizer on every table. The only shop with a door you had to touch and open with no hand sanitizer freely...

Oh really? When I developed a massive tooth abscess many years ago I almost crashed my car as I was in too much pain to pay attention. Being in pain can easily distract someone at a critical moment and distract them causing an accident and injury to themselves or others.

I know someone - extended family - who abuses prescription opiods and is probably the poster person for these guidelines. Their prescription drug stash includes fentanyl patches, liquid morphine & tramadol among others. This has been going on for years. The GP just keeps issuing the scripts...

They might if they were suddenly held to account for their claims. If they had to take responsibility for the woeful figures in terms of improved health, recovery in real terms etc. They might be stopped if suddenly health trusts were held to account for the damage caused to patients...

Sorry, @Woolie. I didn't mean to sound like I was dismissing your concerns, which are wholly understandable. I agree it's better to lockdown hard and get the job done. I just found it a little bizarre that the DIY shop felt a lot safe than the supermarket, was much better supervised etc, when...

They don't completely block human voice frequencies - most don't - but the really do cut it right down. For example, if the kids several gardens away het shouty when playing I can't hear 'em with the ear plugs in but if my husband speaks clearly (not shouts) close to me and I listen carefully I...

I have heard the term emotional lability used when describing ME patients over the years. I think any patient suffering quite serious level of disability, without proper diagnosis or support with no effective treatment and no answers are going to find themselves with a bit of a short fuse...

I wrote this on a different thread a while ago - it's the best method I have found for correctly inserting earplugs. Took me forever to figure it out.

These are smooth, soft foam. I have quite small ear canals and find some of the harder foam ones, or ones with ridged bits horribly uncomfortable - especially when lying on my side for sleep. Here's a link to an Amazon page selling them - sometimes I buy from Amazon, sometimes through ebay...

I find surveys frustrating as sometimes matters are conflated or things described in a way that I can't relate to. Telephone conversation is very tough. I have to be on the ball and that's not always predictable. Written word is better, but I need a lot of time. Sometimes I find I just...

From Ed Yong's tweet this jumped out at me In the UK, as far as I can tell the people who have devalued expertise are the experts themselves. In allowing eminence based opinion to replace evidence and the loudest voices to shout down other people so they could be the go to "experts" those who...

Hardware shops near me have signs up reminding customers not to touch products unless they are intending to purchase them. In the paint sections where they have the colour cards only one person is allowed in and must sanitize hands in front of the staff. any cards they touch but don't take with...

I think the fear is visceral. In a just /fair world no one wants to be the one who "deserves" ill health. We all like to have some (false) sense of control and self determination. When I was growing up and someone experienced bad luck, especially financially, the attitude was "as long as...