Search results

  1. shak8

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    That's some dangerous snake oil. Why not just suck on some drain cleaner?
  2. shak8

    Cognitive factors are associated with disability & pain, but not fatigue among physiotherapy attendees with persistent pain & fatigue, 2019, Antcliff

    The Chronic Pain Self-Efficacy questionnaire was developed in 1980 by Nicholas, et al. Basically it is a tool used to evaluate whether someone will return to work and off benefits vs not. It measures how much a person is able to function in activities of daily life despite their pain...
  3. shak8

    BBC News website: 'Rabbits gave me a reason to live'

    Just one more rabbit post by me: Rabbits are prey animals. Ever alert to danger all around them. Yes, cute and furry with adorable little mouths and whiskers, big ears. All the better to hear encroaching predators. Of course as a child I was attracted to the rabbit's beauty, as well as its...
  4. shak8

    BBC News website: 'Rabbits gave me a reason to live'

    As you can imagine, wonk, I will never and have never eaten rabbit. Well, I guess if I were starving, yeah, I would.
  5. shak8

    medical professionals, psychologists, and researchers

    As a former nurse, I hear/heard cavalier remarks about ME and fibro. Personnel tend to be brutally abrupt and dismissive about anything they, or their family members haven't experienced themselves. Sure, cancer & MS evoke sympathy, but the mentality of healthcare personnel seems to be: I work...
  6. shak8

    BBC News website: 'Rabbits gave me a reason to live'

    My dad gave me a stuffed rabbit after a business trip. The minor but only emotional rapport I had in my family was w/my dad. The rabbit is my childhood essence, my spirit-animal. Still is. Shak is short for shakota, a Pomo Indian dialect word for rabbit. The first rabbit I had was bitten in...
  7. shak8

    Neuropathic pain

    I had an increase in pain last night but I thought maybe it had actually decreased last week (due to lipoic acid started...?). Did a Cochrane lookup of the lipoic acid. There's the one positive Chinese study but of questionable quality. The other study was with cancer patients who had...
  8. shak8

    Microbiome testing reports discussion

    I am a participant in a large, on-going cohort of nurses being studied by Harvard School of Public Health. It's called The Nurses Health Study II. I've been asked to submit my stool and the same day a saliva test. Questionnaires ask about diet (fermented, yogurts, whole grains, etc. etc) in...
  9. shak8

    Persistent Physical Symptoms as Perceptual Dysregulation: A Neuropsychobehavioral Model and Its Clinical Implications, 2018, Henningsen et al

    Pain is a highly evolved survival mechanism. If you are experiencing pain, you do pay attention and you are meant to pay attention, and your brain will try to find the reason for the pain. Whatever they are cooking up here, it will be useless clinically for those with severe pain, as well as a...
  10. shak8

    Royal College of Physicians article: "Do you really believe in ME?" by Dr Nina Muirhead

    After watching "Jaws", my eight year old son wouldn't take a bath for three months as he was sure a great white could come in from a fresh water lake through the pipes.
  11. shak8

    Neuropathic pain

    Hope there is something else for you to try. Sounds like neuropathy to me, itching burning, etc. New drugs should come out at some point. Are you diabetic? Have you been allowed an opioid for the pain? Maybe another anti-seizure drug or something. Ask an endocrinologist? I have fibro and am...
  12. shak8

    Neuropathic pain

    You've got me curious. If you wade deep into the research article, they say that an oral dose of 600mg per day is the best of both worlds, as 1.2gm dose gives 27% of participants nausea. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2836194/ I'm trying 4% lidocaine cream. Directions say: do NOT...
  13. shak8

    Neuropathic pain

    The research article I read about lipoic acid used 600mg/day as their dose. They had positive results when they tested at 5 weeks out. I wonder if you are taking too much?
  14. shak8

    Neuropathic pain

    This is sort of unrelated, but in my literature search (after getting angry about a psych-social and functional somatic disorder article) I remember reading about how people with fibro, etc. focus too much on their pain. That's the opposite of what helps me. If I don't tune in to my...
  15. shak8

    Transcultural, transdiagnostic and concurrent validity of a Control Scale of ME/CFS, FM & Type 1 Diabetes

    About as fruitful as trying to parse an inane philosophical tract. Psychiatrists live with the fairies.
  16. shak8

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    I'm sorry, I meant my going back to uni for probably 20 years.
  17. shak8

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Might have to go back to uni for what, 10 years?
  18. shak8

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Terrific program and thank you so much for finding schedule/presenters.
  19. shak8

    Does anyone here get worse in relation to stress?

    Bravo for the reliable and complete answer. Clear and rational. Thank you for taking the time to write this. I've bookmarked it.
Back
Top Bottom