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Presumable the additional dimensions are those of the BPS universe, made up entirely of unreal concepts, a sort of anti-platonic hell of non forms. For such as a circle to exist, it must be represented in the heaven of forms, so for the BPS non constructs to exist they must be represented a hell...

When reading the symptom lists of ‘ME like Long Covid’, as in this paper, it seems much shorter than most people (adults and children) with ME experience. Is this related to the fact that most patient studied are still in the early stages of their condition, I would regard even a year to...

Interestingly, though mice do not seem to be interested in holidays, moles are. Previously, when I had mice in the house, I used ‘humane’ traps, then releasing the mice elsewhere. If released near enough to home <half a mile, they return as quickly as they can, often going straight back to the...

‘There is evidence that Long Covid’ exists so let’s just apply all the things we made up about other related symptom sets without any meaningful evidence base to that as well’.

Do we know if the June deadline for patients opting out has been extended or if it remains the 23rd of June? I could not find anything on this in the couple of articles I read.

Started looking to see what the Journal’s policy on after the fact deviations from the original protocol is, but not up to reading the full text of their publication ethics policy and the COPE policies which they claim to be bound by (...

For non Norwegian speakers like me, Google translate renders Live Landmark’s tweet ‘PEM er ikke spesifikt og kan kun måles via spørreskjemaer’ into English as ‘PEM is not specific and can only be measured via questionnaires.’ This demonstrates an ongoing failure to understand ME and what its...

Also there is a strong financial incentive for any LP Coach to rebrand themselves and move away from sending a large portion of their fees to PP. The former LP coach that made her way onto a national GP conference line up in New Zealand a year or so ago, had disaffiliated herself from the...

Also studies like this are so import in developing our understanding and definitions of what PEM is, and to distinguish it from the widespread confusion with increased fatiguability. The same researchers that struggle to differentiate ME/CFS from ICF, fail to understand that PEM is a...

Sorry I have not yet pulled these comments together. Have been trying to do some gardening this week, as have had more help available, but as always pacing issues. I am also trying to get my head around my cognitive limitations in relation to collating and integrating information; when I...

A potentially very important study as it stresses how essential using the right diagnostic criteria in ME/CFS research is and that studies using such as the Oxford criteria that is unable to distinguish between ICF and ME/CFS are totally irrelevant to service planning for people with ME/CFS...

Is their any mileage in asking the vocal supporters of the Bristol Lightening Process study to comment on this decision? As well as asking the University itself to comment on how their study got ethical approval when in Norway it presumably would have been considered unethical, is it worth...

Heartening to see a meaningful account of PEM and its significance coming out of Germany.

It is an interesting point. A friend’s daughter has Long Covid with very ME like symptoms and is pressing to move onto an ME diagnosis. She is using the term PEM, and has insights on pacing, cognitive issues, orthostatic intolerance and hypersensitivities that took me well over a decade to...

When Esther Crawley published her Lightening Process study in 2018 I thought great, the whole methodology of open label trails with subjective outcomes in ME will be seen for what it is, this study being the ‘reductio ad absurdum’ of this approach when it purportedly endorses such a patently...

Thank you, a very helpful response. I despair that so many papers like this are still being published without a basic understanding of experimental design, repeating basic logical failings that we were taught to avoid when I was a psychology undergraduate over forty years ago. Real life...

I just did a web search as I am thinking the same. There were lots of links to popular newspaper articles saying that the Indian variant is more readily caught by children, but I did not find any more serious sources.

We have discussed this in previous thread(s) I think. The University of Bristol has this group and possibly another relating to clinical research and the University’s associated publicity highlight Prof Crawley’s work with ME and her research in general suggesting she is a national or even...

‘Yes, but ... ... ...’ I think our response to the UK draft NICE guidelines indicates we collectively could produce our own suggested ideal model of services for people with ME, and even just a rewriting of those comments as a stand alone document rather than numbered responses to something...

Was my hope for Covid studies actually looking at sufficient physiological detail etc to be able to differentiate those who will develop Long Covid symptoms and those who go on to develop ME like symptoms from those who readily recover over optimistic? It seems prospective studies like this are...