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They are not that hot on the Social component either other than their unevidenced claims of ‘secondary gains’ such as claiming benefits and supposedly harmful medical attention in the form of over using diagnostic assessments. Missing completely that for example with ME, we are seriously failed...

It would certainly be a positive approach and promote mental wellness for millions. It might help reduce by 10% the NHS costs, or at least I definitely could misquote research to support that, and by the rule of a third see some 30% of psychologists and psychiatrists actually turn their...

Good to see Prof Chalder has really got her head around the concept of PEM and is so open to listening to the patient experience. (sarcasm alert) How on earth can someone with years of working in this field have so little respect for the people she is working with, and with no relevant evidence...

I was briefly confusing BSP (British Psychological Society) with BPS (bio psycho social), before realising the latter made no sense in this context.

I suppose there could be a trial with two CBT conditions, with one based on ‘BPS’ false beliefs model and one based on supporting people to adapt to a real disabling biomedical condition, though I doubt any of the BPS advocates would go along with this because of their own false beliefs and...

An excellent article that should be compulsory reading for all professionals likely to work with people with ME and/or Long Covid.

I wonder if a reason for this is that as parents and families become more aware of concerns about Crawly’s research that it is harder for them to recruit subjects without the opportunities offered by the Bath clinic to pre train (groom) future subjects.

This is particularly relevant given the Bristol researchers seem to be increasingly basing their research on child subjects who have had a year or more input from the associated Bath clinic, as in this study.

Sorry a bit of a tangent, but .... It seems to me that there is enormous problems in defining what CBT is in practice. My understanding, at least from the origins of CBT, was not that it had specific content, but that it involved objectives agreed between the client and the practitioner. For...

Thank you to @InitialConditions for your work on this, and also to the other commenters so far. I am not with it today and am struggling to get my head around all the FIO information, so will return to the thread later. My main concerns with the consultation draft were that it could be seen as...

This rush of people signing up to this research project rather contradicts the assertion by some BPS researchers that people with ME are anti science. We are not anti science, just anti bad science.

I echo what @Daisybell says.

It is impressive that advocates of somaticisation can attempt to spin evidence contradicting their belief system as supporting those beliefs. The abstract does not say how much of the three years from first symptoms to the correct diagnosis was lost to misdiagnosis, but surely the first take...

Surely they are saying all evaluations of “behavioural and exercise interventions” are inherently crap, but because we can’t do anything about it we will ignore that fact and pretend they are OK. Which is wrong in two counts, firstly if something is inherently crap, that is not a justification...

Prof Crawley explicitly argues this in press interviews, which possibly why she is also an advocate for the Lightning Process, as well as for CBT/GET and now ACT:

Dr Shepherd is an ME sufferer, a GP and Medical Advisor to the British MEA, who, despite the obvious concerns about this statement, is usually spot on. He is someone I have a lot of respect for. The MEA does a lot of good work and currently is very active in relation to getting people with ME...

‘Concord fallacy’ is the idea of having already invested a lot in something the best way forward is to invest more. Also within ‘cognitive dissonance’ is the idea that we see things we have already invested a lot in as good, to avoid admitting we were wrong.

Thank you, for this important link, I had previously read this, but had forgotten, though am not surprised by, how high, both the incidence of orthostatic intolerance and of POTS are in ME. Certainly any one diagnosed with ME should be informed about the potential impacts of orthostatic...

Can we say with out current level of knowledge that POTS is a symptom of ME, or only that orthostatic intolerance is probably a relatively common symptom of ME? There seems to be some variation as to how orthostatic intolerance in ME presents. Obviously for some their orthostatic intolerance is...

Presumably this lack of flexibility is a feature of most benefit systems, insurance systems and work place pensions internationally. For example my work related ill health retirement required predicting when I was some twenty five years away from retirement age that I would never be well enough...