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I want to scream yes, yes and YES!!! in response to every single one of these sentences but will restrain myself to one word in capitals. Is this something that could be done through one of the more sensible charities, in collaboration with S4ME? They've done those big surveys on harm from...

Yeah, the choice of the term "severe" here is unfortunate and creates unnecessary confusion. There's plenty enough confusion around what "severe" actually means as it is. No need to add to it. It's perfectly sensible to separate a group which only meets Fukuda from a group which also meets...

It was just about the number of criteria met, based on past studies having found patients who meet stricter criteria usually are more severe than patients who only meet Fukuda. They didn't describe how severe their severe group was. Though you could go through the tables and check the results...

Gosh, I wish more ME studies would consider PEM in this much detail and relate PEM findings with overall symptom picture! This study asks about: PEM after physical vs mental exertion how long after exertion it starts (since we still don't know if the immediate and delayed symptom exacerbation...

I thought this was a missed opportunity together with there not being a split analysis of the ME/CFS (mostly Fukuda) group with respect to PEM. Would the not-recovered-but-not-quite-ME/CFS group have looked the same as a Fukuda-without-PEM group? And a Fukuda-with-PEM group may have looked...

Videos have been posted (most are in German, some of the English ones have a German voice-over, at least at the start, haven't watched any through): https://www.youtube.com/channel/UC8eFBrwILKRmbLgvtVxXAFg Prusty's is here (English):

Actually, this may not have the expected effect. I tried that phrase out on some friends and a few of them interpreted it as positive. As in "I was living this horribly rushed and stressed life and then the illness gave me a chance to turn my life around and now I'm so much happier". Aargh!

Come to think of it, I rarely even try these days because it is so difficult to do it succinctly. What I do say when I try is, let's say, highly colloquial. I agree, especially for a general audience. Plus, all the other, longer descriptions are packed with abstract words. Most people, the more...

I take back the ancient fossil thing - looks like what we're really doing is training for a mission to Mars :alien:. https://news.harvard.edu/gazette/story/2020/06/neurons-that-control-hibernation-like-behavior-are-discovered/ We also have this thread on mouse torpor neurons...

Mainly posting for the irresistible headline :slugish::woot::laugh: Just as I got used to seeing myself as a dauering - is that a word? - nematode I may have to readjust my self-image to prehistoric fossil, or rather to semi-incompetent-at-hibernating prehistoric fossil. Stuff those illness...

I had a look into this because I've had at least one significant demyelination event (not Guillain-Barré syndrome), documented on MRI. The neurologists can't quite agree on what it was but but the favoured explanation seems to be Transverse Myelitis, the same thing they stopped one of the...

This! Really I think NICE should have just left it to you guys to write the guidelines from the start but that not being an option I'm very, very grateful to everyone who's worked/is working so hard at making sure we get the best possible guidelines. Thanks!

I like @Carolyn Wilshire's comment, my bolding:

I think all the publicity came out of the Brain Health Research lecture. I know they were trying to get the press interested at the time but it took a while to catch on. Until it got on breakfast television that is, and then the others had a moment of FOMO or something. Here's another (short)...

Just the ones on TRPM3 and TRPM2 already discussed here on the forum.

The man appears to have achieved a state of omnipresence. Here's yet another article, this one a little bit different from the others which were basically a direct copy-paste of a University of Otago press release. Also has a slightly cringe-making, if largely harmless, American video inserted...

After explaining where the terms ME and CFS had originated Prof Tate actually said, with emphasis, that patients hated the CFS one because it minimised the disease. Doubly disappointing - disrespectful one could argue - that the host continued using CFS after that. Otherwise it was a pretty...

Mostly about validating ME. Part of it was Ritchie (former league star, ANZMES ambassador or something in that line) telling his story. 12 years ill, well the last 4 years. Explained how he was affected and how there was no help for him at the time. A bit too much emphasis on healthy living and...

Also sensitivity to touch? Hard to avoid in a medical setting but at least avoid unnecessary touch like that nurse kindly patting your arm all the time, well-meaning but...

I'm confused about the cohort here. Is it a subgroup from a larger (GWI&CFS&HCs?) study doing double duty? Or a different cohort but they're using data from the larger study as a sort of control? Does the "suggested upregulation of phosphoinositol signaling pathways" (in the conclusion) tie in...