Search results

Excellent videos. Again. Of course. :) Thanks to all involved, and especially for stressing how much patients' families are affected, too.

Just to clarify because a lot of the media coverage on the mink to human transmission numbers is a little misleading. Yes, 200-odd people have been infected by a number of mink mutations in Denmark, and more in other mink farming countries. This has been going on for some time. However, the...

Not exactly news to any of us here but if all nurses had this level of understanding of ME we'd all be a lot better of. Nurses have been at the center of some of my best and my worst healthcare encounters, the latter being the more common occurrence. I hope this thesis won't just gather dust...

Yes. In the meantime we make do with what we can get. Oh pulease... That got a bit garbled. 75% in wheelchairs? But hopefully it'll result in a good paper or two.

Would be grateful for a plain English translation. Anyone? Looks like your wish is mirrored by the authors @Simon M. The bit I bolded reads to me as a plea for others elsewhere with better funding streams to follow up and expand on the results. Because funding in NZ goes like this: So, a...

I hope this summary of what the Danish media are reporting on this is at least mildly reassuring. Lock-down of the northern part of the Jutland peninsula where the mutation has been found. The whole population there to be tested (280,000 people). Billion dollar price tag for killing the mink...

A little concerning regarding vaccines: More and more mink farms in Denmark are getting infected by corona. It's unclear how the virus is spreading between farms but one suspect is gulls carrying it on their feet (they don't seem to get infected themselves). Up until now infected and...

Looks like a fresh look is being taken at an old hypothesis, the hydrogen sulfide hypothesis. It was developed in 2007 by the mother of a pwME and - this bit I googled - it took off for a bit when Dr De MeirLeir took it up but then interest in it seems to have fizzled out. Now Dr Bindu Paul is...

Must keep an eye on my sleep records next time I get hit with PEM to see if there's a change to REM sleep. I do know my deep sleep decreases significantly with PEM, I wonder why they didn't look at deep sleep here?

For those who are wondering:

I've been given permission to share the details for joining the lecture virtually via Zoom. [Edited: Removed zoom login details. While I was given permission to share I've since heard from other people that they're are now being asked not to share due to concerns about capacity on the zoom call...

Some slides which appear to come from the symposium have turned up. https://www.omf.ngo/wp-content/uploads/2020/10/Prof-Moreau_4th-Annual-Working-Group-Symposium_Stanford-University_Sept-8-11-2020-v6.pdf Please don't ask me where I found the link. I open links I stumble across in new tabs to...

@PhysiosforME Looking forward to your podcast. Here is the link to one of the pacing guides Trish mentioned. The discussion we had in that thread about the drafts for the guide may be helpful, too.

I contacted the university to find out if they're recording the lecture. Unfortunately the answer was no. However, they are planning to live stream via zoom. It's not mentioned on the website but if you contact Emily (email address on the website linked) she can give you the login details.

Yeah, I take mega-much magnesium for another issue (under supervision of my doctor). Started about 3 or 4 years ago so memory a bit vague but I do recall being rather disappointed at the time because I'd hoped the magnesium would, as a beneficial side effect, help my restless legs and general...

Just wanted to highlight the word 'test' in the sentence above to anybody considering iron supplementation to treat restless leg syndrome: do get a test first. Iron is one thing you really don't want to get too much of. n=1 I have restless legs and haemochromatosis (iron overload). I've never...

Agree. For all we know, all they managed to show is that those without PEM managed to complete the treatment and those with PEM dropped out. But since they didn't ask about PEM, who knows. The other thing missing (unless I missed it) is whether the completers actually got fitter or better or...

There's even a glimmer of hope we may, eventually and indirectly, learn more about the role of lipid droplets in ME. Their role in active Covid19 has caught the eye of researchers. With any luck this will lead to some of them looking into their role in long Covid, and with a great deal of luck...

The existence of lipid droplets in cells is nothing new. But it now seems they could have more functions than previously thought: they may play key roles in innate immune response and in regulating cell metabolism. The only search result I got for 'lipid droplets + ME?CFS' is this 2017...

This! And again, for emphasis: THIS!!! Just how do we get funding for replication studies? The whole research ecosystem seems to be set up so that it's those chasing the latest and newest angle with the shiniest toys are the ones who get whatever little funding is available for biomedical ME...