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Slide used in the video, also available here: https://workwellfoundation.org/wp-content/uploads/2020/03/WW-PEM-Timecourse.pdf We've discussed this somewhere before - that I can't locate now - and seeing it again I'm still puzzled by it. I understood the presentation to mean the different types...

The last two articles were first published in March 2019. The first one is new and I didn't get a paywall. Excellent article, sensitively written. It says the earlier feature from March 19 was one of the most read stories of 2019. Go give them some traffic on this one, too, keeps the editors...

Community Q&A with Polybio, October 26. Details and registration here: https://www.meaction.net/event/community-qa-with-polybio/ Sounds impressive but... funding. Why reserve the additional info on study design etc. for those "capable of making larger tax deductible donations"?

She says she rates her participants mild to moderate. I'd be very surprised if anyone with moderate ME would recover from PEM within 72 hours. But I guess if PEM is a cascade of processes going wrong where one thing leads to another leads to another leads to another... then it's hypothetically...

We don't know. But many with very mild ME will choose to exercise - like the person mentioned in the video who trained for a multisport event, ignored the advice to take enough rest days and crashed themselves. So no, we don't know how much, if any, exercise is safe but we do have pretty good...

Yeah I didn't mean repeating the same studies that have already been done repeatedly. More that going forward - say looking at motor unit recruitment - they should do so in a coordinated fashion so as to maximise the results they each get from their 10 or so participants.

I can kind of see that knowing how hard and often you can exercise could be useful for people with very mild ME who wish to exercise for general health without risk of crashing. Though I suspect they don't need an exercise prescription so much as a rest-between-exercise prescription, pacing in...

Pretty good piece. Nothing much new (to us) in what Heidi and Sue say but they both come across well. Ken Walder's section (starting 11:50) was brief but interesting. They're going to use white blood cells to create stem cells and turn those into a brain-in-a-dish (neurons & astrocytes) and...

Yeah, I think there could be a lot of merit in the different groups working much more tightly together. Would be great if they could coordinate in such a way that everyone uses identical selection criteria and identical CPET protocols & other measures (the technical bits of how exactly to take...

That advice box at the end "How to reduce everyday tiredness" was a bit unfortunate. It's not meant to refer to ME but that could definitely have been made clearer. The article itself is actually quite interesting. Much of it discusses a number of different types of tiredness and fatigue - and...

Contains some interesting tidbits including unpublished (I think) data from upcoming publications. Also a finding I hadn't heard of before that a subgroup developed very high BP during exercise. Also bits I didn't understand about arterial(?) resistance. And a planned cooperation with Prof...

The talk is now available on Youtube (haven't watched it yet). The discussion about this video continues here: New Zealand Video: Exercise and ME/CFS, 2020, Lyn Hodges

Thread split from News from New Zealand and the Pacific Islands *********** The talk is now available on Youtube (haven't watched it yet).

Working my way through "The Constant: A History of Getting Things Wrong" now. Highly entertaining. I think it would appeal to a lot of people here. Chock-full of scientists through the ages getting things hilariously and/or disastrously wrong. This episode about Franz Mesmer has me wondering if...

That's really putting the science into S4ME! I like it. Proper patient-driven research not just some proforma... what's the equivalent to greenwashing here, patientwashing? Hm, maybe not the best word but you get my point.

I like curious minds :). Thanks Andy.

You're soooo not alone in this! And I wished I had a good answer. Mostly I just muddle through from one day to the next spending what little energy I have on whatever has floated to the top of the most urgent list. In a way decisions are easier now than when I was less severe. Fewer choices...

In an ideal world yes. Realistically... glances at to do list, compares to energy envelope, computes... very unlikely to happen :(, sorry @Trish. Maybe you could just refer them to this thread in your letter if you haven't sent it yet? The main reason I made the thread a public one was that it...

I reckon this thread is more informative about PEM than some of the published papers out there! :trophy@:balloons::party::thumbsup: It's also been very helpful to me in trying to answer some of my own questions. As I said earlier, I used to think I got PEM from both cognitive and physical...

Maybe they think dogs don't have false illness beliefs? Some slightly tongue in cheek ideas here: 1) Get a medical detection dog charity excited about ME. Somehow... This lot for example works with researchers at the University of Otago (Prof Tate's uni) on cancer detection...