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  1. rvallee

    Body Reprogramming: Reframing the Fibromyalgia narrative and providing an integrative therapeutic model, 2022, Fitzdonald Davies et al

    Oh there's going to be a few of those in the future, for all the "patient-hating charlatans" out there. They will end just the same.
  2. rvallee

    Supervised, individualised exercise reduces fatigue and improves strength and quality of life more than unsupervised home exercise.., 2022, Shah et al

    Effect appears trivial and confidence intervals make the claim very suspect, especially by getting worse at the 2nd end point. There are thousands of unaccountable factors with this much fuzziness. Academia seriously needs to crack down on what is an unmistakable pattern of wildly inflating the...
  3. rvallee

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    Moved post Interesting thread on thrombosis, how platelets working with neutrophils make an important part of the innate immune system, how more likely it is that there is a source for those microthromboses and microclots, which would make treatment like IVIG and apheresis unlikely to succeed...
  4. rvallee

    England footballer forced to take break because of fatigue

    There's starting to be quite a bit of evidence that myocarditis and/or pericarditis may be a factor here, perhaps impairing the damage repair progress with exertion leads to small weaknesses?
  5. rvallee

    Long Covid in the media and social media 2022

    (Buzzfeed news is separate from Buzzfeed, and sometimes produces quality journalism)
  6. rvallee

    Long Covid in the media and social media 2022

    Apparently, the CDC has closed up shop when it comes to answering questions from journalists. There was also a mention from a prominent LC advocate saying that the CDC is keeping quiet about LC because it's politically inconvenient to admit that the pandemic isn't over. This is blatant political...
  7. rvallee

    Requests for information/papers/sources/documentation

    Already many good answers but I think there are still some missing resources. Always good to expose this to newcomers, this stuff doesn't get a lot of visibility unless people seek it out.
  8. rvallee

    Functional neurological disorder: new subtypes and shared mechanisms, 2022, Hallett, Dworetzky, Stone et al

    My understanding of this word salad is that it is the patients who are developing a model of predictive coding about symptoms and blah blah blah. I don't think they're claiming they have a model, rather they have a claiming that building this (cognitive) model is part of somatization, it changes...
  9. rvallee

    Functional neurological disorder: new subtypes and shared mechanisms, 2022, Hallett, Dworetzky, Stone et al

    Notably absent: immunology. Those are all widely reported in LC. Literally all of those I see commonly reported: non-epileptic seizures, limb weakness and difficulty controlling movements, POTS obviously and of course brain fog. And I have no idea how they can seriously argue for "new subtypes"...
  10. rvallee

    Mental health specialist video consultations for patients with somatic symptom disorder in primary care: protocol for a.., 2022, Haun et al

    It should, according to the wild promises. If CBT worked, it would be massively useful to quit smoking and other habits like adhering to diets. It could also be very useful at disciplined behavior, for things like athletes and highly skilled professions. No one uses it for any of the intended...
  11. rvallee

    Prevalence and characteristics of somatic symptom disorder in the elderly in a community-based population:.., 2022, Wu et al

    This is the stuff that really should give people pause about the validity of this construct. It shows the utter silliness of the ideology. Sadly, it won't. This is an idea that should be rare, in the 1 in thousands. And they find it makes up a supermajority exactly in the population where a...
  12. rvallee

    Silent/soundproof living: tips and guides to achieve living in silence

    It's a luxury not everyone can enjoy but one of the fortunate finds I have made is a (hopefully) silent (enough) coffee grinder. I have been searching for this and they are typically very loud, some as high as 85dB, so basically out of the question. I was about to give this up and found one that...
  13. rvallee

    Silent/soundproof living: tips and guides to achieve living in silence

    I am always looking for silent/quiet versions of products and ways to reduce noise at home, and came upon this website dedicated to all sorts of tips, DIY guides and product recommendations for soundproof living. Since this is a common problem, I figured it could be a good starting point for a...
  14. rvallee

    The underlying sex differences in neuroendocrine adaptations relevant to Myalgic Encephalomyelitis Chronic Fatigue Syndrome, 2022, Thomas et al

    This is a good research avenue but it's not unique to ME and should be studied within the broader context of why chronic immune diseases affect women more (but not exclusively) than men, especially autoimmune diseases. Of course that requires accepting that the whole nonsense about dismissing...
  15. rvallee

    Non-improvement in chronic fatigue syndrome: relation to activity patterns, uplifts and hassles, and autonomic dysfunction, 2022, Friedberg et al

    Google returns nothing for behavioral uplift, seems to be something they made up. Making stuff up is a very lousy alternative to science. Not that they can actually take any of those into account, all of this is still just doing fuzzy maths on loose guesstimates with a pre-approved conclusion...
  16. rvallee

    Long Covid in the media and social media 2022

    It's good that they're sounding the alarm about the horse possibly bolting out of the stable. But the horse has already smashed a hospital, taken a school hostage and is doing more mayhem that's all over social media already. But it's nice that they're sounding the alarm, having dismissed...
  17. rvallee

    A better but persistently low health status in women with fibromyalgia during the COVID-19 pandemic: a repeated ..., 2022, Koppert et al

    Well, yeah, it was loudly argued by the disabled community how the pandemic had made some things more accessible. It's actually remarkable that they'd miss this entirely, I'm sure this information was volunteered by the people they talked to. You scream at a wall and the wall responds "uh?"...
  18. rvallee

    Somatization in Adolescents With Persistent Symptoms After Concussion: A Retrospective Chart Review, 2022, Green et al

    That's not even a thing. It's explicitly a physician's judgment based on lack of information that has no validity beyond being someone's opinion about things they can't possibly know, it's as valid as a psychic "identifying" your karma, or spirit energy, or whatever. Being a physician does not...
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