Search results

  1. rvallee

    Long Covid in the media and social media 2022

    National Geographic: Can this 19th-century health practice help with long COVID? https://www.nationalgeographic.com/science/article/can-this-19th-century-health-practice-help-with-long-covid Doctors used to swear by the slow recovery period known as convalescence. Some experts say embracing it...
  2. rvallee

    United Kingdom: Independent SAGE

    It's a bit hard to interpret the way it's written, but it's possible that she's newly joining it: I took the first interpretation when I read it, but I'm not sure which it is.
  3. rvallee

    Long Covid in the media and social media 2022

    That's what I was thinking of, wasn't sure if it had been updated since. I think it was supposed to be a "living guideline"? Coma is technically alive.
  4. rvallee

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    How can they "have to take" an approach that is already the standard that failed Long Covid to begin with? It's literally because of a BPS approach that medicine has nothing but a BPS approach to offer to Long Covid. It's what's failed since the beginning. And the solution is to "take a BPS...
  5. rvallee

    Using clinical patient characteristics to predict treatment outcome of cognitive behavior therapies for individuals with [MUS], 2022, Sarter et al

    Genius level thinking: people on disability are sicker on average than people who aren't, therefore if we eliminate disability benefits, fewer people will be recorded as ill. Also: eliminate hospitals, way too many people die there, clearly massive death traps. Which is technically accurate...
  6. rvallee

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    Two of us have pointed this hypocrisy to them on Twitter. I don't expect any response but they are showing how EBM is all about eminence, they only respond to vague allusions from a visible "expert", while ignoring substantial criticism from invisible people. It's all about the size of the...
  7. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Ugh. The iron law of institutions strikes again: The people who control institutions care first and foremost about their power within the institution rather than the power of the institution itself. Thus, they would rather the institution "fail" while they remain in power within the institution...
  8. rvallee

    Activated glia cells cause bioenergetic impairment of neurons that can be rescued by knock-down of the mitochondrial calcium uniporter, 2022, Casaril

    Wasn't there a recent study on this, in Long Covid I think, that looked at differences in mitochondria and found that differences in membrane potential were the only significant finding? Highly possible I'm mixing things. So much research, so little of it memorable.
  9. rvallee

    Course of post COVID-19 disease symptoms over time in the ComPaRe long COVID prospective e-cohort, 2022, Tran et al

    The lead author, highlighting in their own words what they think are the main points:
  10. rvallee

    A review of the treatment of functional neurological disorder with intensive short-term dynamic psychotherapy, 2022, Russell et al

    It's a review, whose purpose is to promote a particular treatment? That doesn't sound like a review. Sounds like an ad. It's also a lie to say that there is neuroimaging evidence supporting this has anything to do with "emotional processing". Just arguing for a preferred explanation is the...
  11. rvallee

    Using clinical patient characteristics to predict treatment outcome of cognitive behavior therapies for individuals with [MUS], 2022, Sarter et al

    Pretty much literally: we worked a lot on this so you will take it or leave it. What does it matter that it was evaluated more than anything else? It's useless. In fact it's been way over-evaluated, literally hundreds of identical attempts of the same thing, all showing the same: inconclusive...
  12. rvallee

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I don't think the substance matters as much as who put their name to it, what institutional reputation they can boast about. As long as the substance is accurate, it's probably good enough. So anything by the most official sources, the rest will probably not even be skimmed. Doctors are swamped...
  13. rvallee

    United Kingdom: Independent SAGE

    I've been very unimpressed by what this Independent SAGE have produced. Generally hostile to anything that doesn't explicitly limit LC to being an entirely new phenomenon, very little ability to learn from new information. Figures, Greenhalgh is on it. But they've just added new members that...
  14. rvallee

    Long Covid in the media and social media 2022

    This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to build support for a BPS approach to LC. You know what to do: answer honestly. It's short, about 5-10 minutes. Mod note: This post has been copied to start a new thread: University of...
  15. rvallee

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    Copied from the Long Covid thread This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to build support for a BPS approach to LC. You know what to do: answer honestly. It's short, about 5-10 minutes.
  16. rvallee

    Long Covid in the media and social media 2022

    I was not aware that NICE published LC guidelines. I know NICE produced preliminary early stuff a while ago, but to call this a guideline is really stretching the definition of many things. It's actually surprising that they haven't done anything since then, seems to have a wait-and-see approach...
  17. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It's certainly true of the 2007 guidelines. That was an ideologically-driven mess. Very corrupt and a good thing it got somewhat corrected. The increased activity on social media by long haulers is really not giving him a good day. What a tool. I assume this will only increase his victimhood...
  18. rvallee

    Long Covid in the media and social media 2022

    Gaslighting 101: I downloaded the document, just in case. Note the date, no one can claim this was developed for Long Covid. Healthcare systems are keeping a separation with ME, while explicitly using the same guidelines. Complete lack of integrity. It explicitly instructs to diagnose...
  19. rvallee

    USA: The White House: Memorandum on Addressing the Long-Term Effects of COVID-⁠19

    The presidential memo on Long Covid instructs the Secretary of Health and human services to lead a task force. This is the US Secretary of HHS:
Back
Top Bottom