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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    I just donated and shared it around in various places in the hope it might also help.
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    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    This is an archive from 2014 of the original co-cure website: http://web.archive.org/web/20140625035237/http://co-cure.org/ However it was mainly a mailing list and many people who used it would never have gone to this site
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    UK: NICE Longcovid guideline 2020

    This now has 109 quote tweets which I think is the most ever for one of my tweets plus 141 other retweets and lots of replies. It's also popular on Facebook but more things can really take off there. I didn't mention her by name, but I don't think I'm going to be on Prof Turner-Stokes'...
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    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    Incidentally, I send a link to the Science for ME weekly update each week to Co-Cure.
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    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    For my sins, I sometimes get complaints that people can’t unsubscribe at the link including one this weekend; I am able to tell them how to unsubscribe. Also there have been some complaints that people’s messages haven’t been approved despite the fact that I don’t see their submissions. What fun.
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    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    Unfortunately I can't change the footer, nor do I think there is anyone alive who can. I did post at least one message to the list at some stage to point out that a new website had been set up at the link that wasn't associated with the list.
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    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    Before social media, mailing lists were arguably the main way information was distributed in the ME/CFS community. Co-Cure was arguably the most important list in the late 1990s and for much of the 2000's. It wasn't designed for discussion, but stand-alone posts so it was generally acceptable...
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    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    Please don't ask me to talk about thirds: it might get me in trouble! :laugh: I remember a friend from Dublin but now living in New Zealand posting how his son was wearing the 33 jersey which he figured must be deliberate!
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Hopefully this World Economic Forum article hasn't been posted already? Only other reference to "post viral" that I recall:
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    UK: NICE Longcovid guideline 2020

    Regarding "social mystique" :laugh:
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    UK: NICE Longcovid guideline 2020

    This has already prompted a lot of discussion on Twitter. Also this response for what it is worth:
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    UK: NICE Longcovid guideline 2020

    I thought I would highlight these views more widely:
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Dr Strain who has a CFS clinic in Exeter mentions “chronic fatigue” towards the end.
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    The biology of coronavirus COVID-19 - including research and treatments

    Dr Strain who has a CFS clinic in Exeter mentions “chronic fatigue” towards the end.
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    Dr Alastair Miller's misleading claims about effectiveness of the English NHS (rehab) ME/CFS clinics, Royal Society of Medicine webinar in Sept '20

    https://measussex.org.uk/dr-alastair-miller-on-me-cfs-and-covid19-september/ Disappointing to see these comments on a charity website, but then this charity has been tied to the biopsychosocial approach to ME/CFS for a long time, from what I have seen.
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