Before social media, mailing lists were arguably the main way information was distributed in the ME/CFS community.
Co-Cure was arguably the most important list in the late 1990s and for much of the 2000's. It wasn't designed for discussion, but stand-alone posts so it was generally acceptable to forward messages from CO-CURE to order discussion lists, which happened a lot.
There were a team of moderators, who worked to moderate messages and lots of people made submissions.
Eventually, the system started to break down. Some of us were given the power to approve our own posts.
Unfortunately then the list owner, Ray Colliton, passed away, and the list now has no list owner or even moderators. So it has largely fallen away with only a handful of us making submissions.
Somebody in recent years has set up a website called CO-CURE, which has nothing to do with the original CO-CURE list or the original website that was associated with it, which was let lapse.
The archives of CO-CURE can still be read by anyone here:
https://listserv.nodak.edu/archives/co-cure.html
I still think it could be a useful resource to find items from the 1990's and 2000's that haven't been archived on the Internet. I still sometimes do the odd search for items there.
