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Mine involved a cut into the skin, and then parts of the muscle being cut out with scissors.

I thought it would be useful to have a thread for this. Muscle biopsies aren't currently considered useful in ME/CFS but they are useful in diagnosing other illnesses that might look like ME/CFS. Today I've had a muscle biopsy with 3 samples, in the upper leg. It was painful despite local...

The book has an Amazon rating of 2.6 out of 5 at the moment. I'm not sure how someone who did any research at all could believe that opposition to CBT/GET is a fringe movement among patients when researching this for 10 minutes should make it very clear that major patient organizations in the...

When your research is so terrible that your only chance to succeed is to silence patients... It does confirm that the BPS people are trying to oppress patients.

Professor van Vugt: “Just by looking at the muscle biopsies, you see that the firmness of the muscle is different. The firmness of the muscle has to do with the connective tissue, and there are now many theories about that.” My understanding is that the samples have been collected but there...

I wonder if the UK is heading towards a situation where LC ends up being neglected (because acknowledging its full extent is seen as too costly), and ME finally gets some recognition as serious disabling illness?

I don't believe this would be good. The BPS people would probably avoid open debate and conflict and instead misrepresent their own work and views, only to then later launch an attack in the press to try and force what they want. They are totally untrustworthy and unable to enter into...

It might be better to ask journalists to cover the roundtable session.

It would be interesting to know what they consider "convincing evidence that CFS is a functional somatic syndrome".

I vaguely remember that this is not planned and believe this is because the technology used is different from that required for diagnosing a genetic disorder. Maybe also because it would be a lot of extra work.

Share some links please.

After the report criticized the BPS approach harshly, it seems unlikely that the panel will contain any BPS oriented people.

The report is good. My thanks to the people involved in making this happen.

More than a complaint it would be useful to show how Fox is spreading misinformation when the SMC proclaims itself to be a solution to misinformation.

Funny coincidence: I just got a call from the rare diseases clinic for a muscle biopsy on 7 June. If the problem is metabolic there is a chance it can be discovered that way.

I don't normally consume sugar or sweet drinks. The positive effect of eating is most noticable during or right after exertion and the food is carbs. This is usually not a large meal. I've had symptoms triggered by exertion nearly disappear within minutes. It seems like an important hint of...

I don't normally buy and drink fruit juice either. Some family friends had brought it a few days earlier. I also often feel worse after eating large amounts, so I tend to eat smaller amounts more frequently. I do wonder if I have a neurometabolic disorder instead of ME/CFS.

I did some light manual work and became increasingly symptomatic. The symptoms that I remember included fatigue, malaise difficulty applying sufficient strength to the electric screwdriver to fully insert screws, and after repeatedly having to bend down, having increasing difficulty tolerating...

Perhaps some context is useful: a while ago I was putting together a Hollywood swing. During one of these construction sessions I started becoming exhausted and weak in my limbs and dizzy. 5 minutes after drinking some fruit juice I was able to resume working and finish that day's session...