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  1. lunarainbows

    Private UK Consultants not using the psycho-social model recommendations

    Re Paul Worthley, I have only heard very good things about him and that he’s very supportive and kind. He’s helped a few people I know. I tried to get an appointment with him recently but he doesn’t do phone appointments anymore, only clinic visits :( I would be grateful if anyone who has seen...
  2. lunarainbows

    Weird NHS ME clinic referral form

    I got this at St Helier as well. And it asked other odd things Too but can’t remember I also had to fill out the anxiety and depression questionnaire think it’s called GAD? The one usually used in hospitals / clinics. I had a high anxiety score because I have high anxiety which I’ve had...
  3. lunarainbows

    Private UK Consultants not using the psycho-social model recommendations

    I’ve spoken to dr Bansal on the nhs, on the phone. To be honest I didn’t have the best experience with him, I believe this is because it was on the NHS. I was severely ill at the time, having been through a CBT trial. The process for going to st Helier clinic is they send you some questionnaires...
  4. lunarainbows

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Hi Simbindi I’m interested in where to get these lenses? Can they go over prescription glasses?
  5. lunarainbows

    Fundraising: Manchester (UK) Primary Care research: Exploring Trauma & Distressing Experiences Following Medical Encounters.

    I’ve had this. I was lying in bed unable to sit up and I was asked, “so do you get counselling?” To which I managed to whisper out.. I can’t really talk, to do counselling you know..
  6. lunarainbows

    Activity baseline vs activity ceiling, why concepts and language matter

    Hi @Keela Too. I wanted to say thank you for posting. :) This means a lot to me. I think I’ve definitely understood what pacing and baselines and GET is now. As well as when the ceiling naturally gets higher. Especially from this bit: This makes so much sense to me and it occurs to me that...
  7. lunarainbows

    Activity baseline vs activity ceiling, why concepts and language matter

    Thank you. This is useful information. :)
  8. lunarainbows

    Activity baseline vs activity ceiling, why concepts and language matter

    Thank you for your reply :) exactly what you said - they believe they’re right, and you go along just in case it somehow helps you. That’s been the story of my life with all the various things I’ve tried since I got ill 4 years ago. Thank you for sharing your experiences too. I’ve tried to...
  9. lunarainbows

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    The worry with the rise of this psychosocial stuff is that someone I know will see this and it will feed into their already warped perceptions about what my illness is. It’s horrible. It makes life even harder for us.
  10. lunarainbows

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    Their 5 day healing challenge from Instagram which I got an email to follow. This is day 1
  11. lunarainbows

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    And some more. The app is also big on forgiveness and how that helps heal conditions. They quote some research in their app. Also here’s an email about how it helps M.E
  12. lunarainbows

    Audio distraction: podcasts, audio books, radio on demand

    Aaw yes. And then book 6 and book 7 were very sad as well. Dobby :cry: Jk Rowling apologies each year for someone she killed in the books but didn’t this year. I can recommend Mugglecast as a Harry Potter podcast if you like audio and don’t listen to that one already. I try to get my Harry...
  13. lunarainbows

    Audio distraction: podcasts, audio books, radio on demand

    I’m hufflepuff although perhaps a bit of Ravenclaw too, I love Luna Lovegood! I would have to say book 5. It really left an impression on me - I remember reading it well into the night and crying so much when Sirius died. But the book was so long and so detailed, I loved it. The whole order of...
  14. lunarainbows

    Audio distraction: podcasts, audio books, radio on demand

    Yay what house are you in? And what’s your favourite book of the 7??
  15. lunarainbows

    ME Association magazine summer 2019

    This is the post but I also can’t see all comments. Then I went onto it on the fb app and even though it says 15 commevts, only 9 are showing. Maybe they deleted the comments?
  16. lunarainbows

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    Yes. So they have a curable fear busting workshop for around $90 And curable “groups” which is like an exclusive group you can join with other people and do extra sessions together and have group chats over 12 weeks, it costs I think somewhere around $1600 or $1800
  17. lunarainbows

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    Don’t actually think being a hippie is one of their “predisposing factors”. However according to Curable, being a -perfectionist -a helper personality - a people pleaser - having an inner critic Does contribute towards you developing MUS.
  18. lunarainbows

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    I know. But it’s so easy to get taken in by it. There’s a bit of an obsession with pinning a lot of things on trauma even in general psychology. I had quite serious trauma in my childhood and as a result of that no one took any of my difficulties seriously including anxiety, bullying other...
  19. lunarainbows

    Audio distraction: podcasts, audio books, radio on demand

    Eddie redmayne does fantastic beasts narration and oh my gosh it’s amazing. I love Eddie!
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