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There's also this: https://www.omf.ngo/2017/07/12/norwegian-prime-minister-on-me-cfs/

I've made my second donation now, and at the same time I helped a friend with ME to donate too (the payment process was too difficult for her cognitively). Also, a couple of weeks ago I asked the patient organisation I'm a member of to please make a donation, and they did :) 83%, $62,931. 791...

Great questions and suggestions, thank you :) I too would love to know what kind of support would be the most effective, what strategy and tactics would be worthwhile, and if there's anything we can do to help. RME Stockholm (a local group of the patient organisation RME Sweden) would probably...

I agree, it is sad :( It's difficult financially and also difficult to find and recruit competent people with sufficient skill and knowledge. Moneywise Stora Sköndal and Bragée currently have very similar agreements with Stockholm County Council, but as healthcare providers they seem to have...

Stora Sköndal to temporarily stop accepting new patients Less than a month ago Stora Sköndal ME/CFS Center in Stockholm, Sweden, filed a request to temporarily stop accepting new patients. The reason given is that their waitlist has been growing uncontrollably lately, because of all the...

Bragée ME/CFS-Center in Stockholm, Sweden, is (probably) closing. They gave official notice of termination of their agreement with Stockholm County Council in the beginning of March, which means that they will be closing in September unless Stockholm County Council changes their mind and agrees...

Sorry! Thanks for letting me know. They did show up for me earlier today, I'm not sure what changed? I've edited my post now. Are the images showing up now?

Their application to the ethics review board has a lot of details about the hows and the whys (47 pages, all in Swedish). Here are some excerpts: (Edited to replace image links with uploaded image files.)

Dr Per Julin, the study director, is one of the very best biomedical ME specialists there are in Sweden, so this is definitely no joke :)

Värmlands Folkblad: Dags att synliggöra ME https://www.vf.se/insandare/dags-att-synliggora-me/ Google translate, English ("Time to make ME visible")...

And here are a couple of tweets by Helmfrid (thank you!) in response to Reimer's SVT.se opinion piece earlier today:

Speaking of Reimer. Sten Helmfrid published this brilliant article last month: Mats Reimers blogg på Dagens Medicin ger en systematiskt missvisande bild av ME/CFS https://www.researchgate.net/publication/323689529_Mats_Reimers_blogg_pa_Dagens_Medicin_ger_en_systematiskt_missvisande_bild_av_MECFS

SVT.se: "Inte klarlagt att kroniskt trötthetssyndrom är en fysisk sjukdom" https://www.svt.se/opinion/article17674467.svt "Not determined that ME/CFS is a physical disease" (Google Translate not available) Reimer is one of the most notorious BPS extremists in Sweden.

Läkartidningen: "Debatt: Släpp in funktionella neurologiska tillstånd i neurologins finrum" by Carl Sjöström and Anders Lundin. http://www.lakartidningen.se/Opinion/Debatt/2018/01/Slapp-in-funktionella-neurologiska-tillstand-i-neurologins-finrum/ Google Translate, English Journal of the Swedish...

"This survey will be open until the end of July." according to Leonard Jason's post on Facebook.

Uppgång: Inget botemedel finns för Jenny http://www.uppgang.com/nyheter/enkoping/inget-botemedel-finns-for-jenny-4946920.aspx Google Translate, English ("There is no cure for Jenny")...

Done :) It took me several hours (not including the many long breaks). Very hard work, and I wrote several long comments too. I think it's really great that they are interested in trying to improve the definition and understanding of PEM (super important for so many different reasons!), and...

Aftonbladet: Kronisk trötthet inte bättre av träning https://www.aftonbladet.se/nyheter/a/9mMrRl/kronisk-trotthet-inte-battre-av-traning Google Translate, English ("Chronic Fatigue not improved by exercise")...

Using capitals to separate words in hashtags is very important for screen readers (apps etc that convert text into synthesized speech) to function properly. Having said that, I agree. The simpler the better :) ETA: Brilliant idea/thread, @Kalliope! Definitely worth a try! I would join in, use...