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  1. inox

    Dutch College of GP's removed ME-CFS guidelines from its website

    YAY! That's amazingly good news - it's like wathing the pace-imperium crumbling bit-by-bit real time :) Congratulations! :)
  2. inox

    Article on ME/CFS in GQ magazine

    And this bit is very nice :)
  3. inox

    Article on ME/CFS in GQ magazine

    Haven't read much of it, but it starts out good at least? :) Most people don't read past the ingress anyway ;)
  4. inox

    UK: Shared GP appointments trialled - and patients 'like' them

    So, these are essentially doctor-led support groups, for one condition per group I assume? I think that might be a good idea, at least for some of the less controversial diseases. In Norway, you can get a stay at a rehabilitation center, or hospitals will have patients courses at the hospital...
  5. inox

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    But asking the question would still make MP's/politicians aware of misuse/misrepresentation of the quote, and the conduct of the researchers? Someone reading the newsletter would have no way of knowing it wasn't a statement made to the trial participants.
  6. inox

    BBC trust me I’m a doctor tests a placebo for back pain and sees significant results

    Perhaps, you guys are probably right, did notice it was a smallish study as well. I'd still argue though, that if anyone haven't checked to see if placebo needs to be blinded to have an (placebo)effect - then it's an assumption. But my google-fu went away with my mudlded brain :p
  7. inox

    BBC trust me I’m a doctor tests a placebo for back pain and sees significant results

    And, someone have actually tested this: https://www.theguardian.com/science/2010/dec/22/placebo-effect-patients-sham-drug But didn't read the study itself, to see if it might be valid: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0015591
  8. inox

    BBC trust me I’m a doctor tests a placebo for back pain and sees significant results

    That's a common assumption, but do we really know that? I remember reading an interview with an illusionist, saying he found people either knowing or suspecting he was - ehm - 'doing his thing to influence them', was easier to actually trick. Maybe that's not entirely the same situation, but I...
  9. inox

    Concerns about Cochrane

    Nothing new here, but I'm quit happy with this beein brought up by the editor himself, in the journal for medical professionals. Included an discussion about different thngs that can bias meta-reviews. He really opened up the door for us now - to start pointing out the problems with the...
  10. inox

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    :rofl: ah, you're right - thanks for the giggles :)
  11. inox

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    That Nina Andresen person is _really_ annoying. I can sort of deal with Vogt, Woller, Landmark, Malterud and that gang - you know where they are coming from and what to expect. But this Nina person, has this gift of twisting reality, mixed with the aura of seemingly expertice - and the advantage...
  12. inox

    (not a recommendation) What if exercise makes you worse?

    He should really take his own advice, from his fitness page (unsafe link?): https://erniesfitnessworld.com/about
  13. inox

    (not a recommendation) What if exercise makes you worse?

    The original article reads like an ad - ending with: and his contact information, email and phone. There's also this gem, his 'truth witness' for the fitnessplan he presents: "According to Jim Beatty, personal trainer and owner of FitnWell in Philadelphia: "There is always progress to be...
  14. inox

    Stuart Murdoch (of Belle and Sebastian)

    Different Gupta :) Ashok Gupta is the one with the LP-like self help programme: https://www.guptaprogramme.com/
  15. inox

    LP coach on research, Lightning Process and ME (Norway)

    Steinkopf is a rockstar!! :D :thumbup: The need to point out the financial interest might seem weird to non-norwegians, but I think it's crucial to hammer in this point. Landmark has for years been accepted as an "ME expert" and used by journalist etc to give an opinion on all things ME
  16. inox

    The effects of warm water immersion on blood pressure, heart rate and heart rate variability in people with CFS, 2018, Parker et al

    Ah, that's the important little bit I was missing - thanks :) I still think it's strange they didn't include at least one datapoint, to get at idea about if it might be beneficial to patients or not. Also find the conclusion misleading, : " Clinical implications: Warm water immersion appears...
  17. inox

    Henrik Vogt: IOM review panel biased by patient influence

    Edit: I'm sorry, not really sure why I replied to your post, if my answer seems totally unrelated :) He has an interest in and is invested in MUS and theories around that, ME/CFS especially. Wrote a paper on “psychoneuroimmunology”, and seems to truly belive our minds are controlling our...
  18. inox

    Henrik Vogt: IOM review panel biased by patient influence

    You are just getting a little taste of the truly absurd ME-debate in Norway. This is the level it's been at, for the last decade or so. I wrote a rather gloomy post, and deleted it again, because I truly belive things are very, very slowly starting to change. The norwegian documentary shown on...
  19. inox

    Well-known, famous people with fibromyalgia

    Since I didn't know who Lauren Laverne is, I googled. At least the info about FM in the media coverage seems pretty good? Both the articles I took a peak at mentions "no cure". Perhaps she/they only ment trying to get enough symptom management in place, to see if continued work is possible for...
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