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There is a huge public health problem in the UK, where sedentary behaviour and massive calorie intakes are causing an epidemic of avoidable disease. Number of children getting enough physical activity drops by 40% "The number of children meeting the recommended amount of physical activity for...

"Establish the first Genetics Centre of Excellence. We will establish a virtual network of M.E. researchers to work with the M.E. community, to build on the genetic insights gained through DecodeME and other studies. We will establish a programme of high-quality research, supported by the Centre...

At this point, it has to be accepted that ME/CFS is a very difficult problem. Even if resources hadn't been wasted on chasing down a mythological psychological cause, 20thC style biological investigation may not have advanced understanding of ME/CFS very far, or even at all. We can see from the...

Probably worth mentioning IBS as a co-morbidity, not just a stand alone illness. IBS in ME/CFS may be different to IBS in an otherwise healthy person.

The decision about NIHR's long term funding of/ relationship with Cochrane is due this month - the current arrangement ends in 2023. Presumably this has implications for both the advisory group and the planned substantive review ? If Cochrane doesn't yet know how it will operate in 12 months...

Thank you. I think that "postviral fatigue syndrome" is doing a lot of work !

Do they give a reference for that ? Incidence is very poorly recorded which makes understanding recovery rates very problematic. That Norway figure would translate as 23k new cases a year in the UK which when matched with published age of onset figures would mean 70%+ lifetime recovery rates.

You are right of course. But - committees ! They have a life of their own, and are almost impossible to kill, they just go on and on unless someone decides to actively put them down. In the case of this advisory group, until its collective membership has decided it has done enough advising, or...

I guess a lot of those who might be involved have had a major diversion of attention/resources* because of 30 months of pandemic. Certainly Hilda produced a lot of very valuable work on vaccine efficacy. Even people we are not well disposed towards may have experienced very profound impacts on...

I'm sure that is right. There isn't much latitude for arguing with NIHR for more basic research because that isn't what the core NIHR brief is and the NIHR might reasonably argue that funding basic research is the MRC's role. In reality there's a lot of fuzzy boundaries, hence NIHR cofunding...

Wasn't sure where (or if) to put this. But the level of waste (something which politicians love to hammer the NHS for) related to COVID is incomprehensible - if Government invested a fraction of the cost of this waste in research and care, thousands of lives would be improved. "Nearly one in...

Oh my ! No wonder there was such anxiety amongst the usual subjects re: the new Guideline, not only has MRC abandoned them this has the potential to cut off the ever flowing NIHR cornucopia of funding for psych approaches for ME/CFS at source.

Difference between Briefing Paper and Briefing Note - the ideal for the latter = single page A4 at 14point type face. In this case ME/CFS is peripheral to the central issue which is "use of public funds: fairness of distribution and effective use thereof, plus a couple of add ons: gender...

They listed the Pariante, Goldsmith and Risdale awards, what's missing is the direct support via the NIHR Specialist Biomedical Research Centre, but the apportionment of salary and oncosts for Chalder, Pariante and Risdale(?) directly to ME/CFS research is difficult to account for and probably...

That's a very efficient way of targeting effort - there's no point in contacting candidates in a GE who are a) never going to win, or b) represent a Party that will have no impact in the forthcoming Parliament. Personalising contact is important, a letter needs to come from someone who is on the...

Certainly with/without 'reported PEM' is a viable categorisation - but caution is needed to avoid introducing a prior discrimination i.e ME/CFS/not ME/CFS, when there is no prior pathophysiological evidence on which to base that discrimination. PEM may turn out to be descriminatory as a proxy...

I've added link to the op - appologies for omission :oops:

No from me. Also 'shudder' at "briefing note" - I'll start work on something, will share via dm - could get a bit messy for an open thread.

A long jargon filled paper of psychologists writing about psychology for other psychologists - v heavy going ! However there is a genuine attempt to get to grips with the problems that psychological (and by extension, psychiatric) research faces. "The reformers’ efforts to create a scientific...

Kinds of Replication: Examining the Meanings of “Conceptual Replication” and “Direct Replication Maarten Derksen, Jill Morawski Abstract Although psychology’s recent crisis has been attributed to various scientific practices, it has come to be called a “replication crisis,” prompting extensive...