Search results

I think that we will be getting recordings off full talks starting sometime this week. They may well be adding up to 7 peopel to the PAG, may hear re this before Christmas, not sure.

The recordings will be posted next week. This year most of it was recorded, except possibly the 2 workshops. These were on benefits and pacing. THe latter was by Sue Pemberton.

Hi @obeat. Yes the imaging research that Neil Harrison is doing does include the brain stem

Are you thinking of anything in particular re the brain stem? @obeat

Would it be better not to mention it then?

Should I ask AfME if they can put it on their Facebook/Website? I will be at their AGM tomorrow and could pass it on to Chair of Trustees. Any other questions for them/Neil Harrison.....

Would it be possible to set up a thread where we could just post refs to current clinic info and maybe also current training and teaching re management of "CFS/ME"? Or would that be better in a read only section of the library?

You are producing excellent summaries @Sly Saint

Yes my daughter feels worse just before and during periods and they are somewhat erratic. They are more frequent ans sometimes longer.

My daughter was found to have antibodies to the Pyruvate Kinase receptors in the Basal Ganglia. She was tested for these because she had a high ASO (Anti Streptolysin O) titre. She has no motor tics, just significant impairment in cognitive function.

Well done Trish.

There was a more recent BPS paper which differentiated between healthy and unhealthy perfectionism: https://www.researchgate.net/publication/41762409_Personality_and_perfectionism_in_chronic_fatigue_syndrome_A_closer_loo It's those old familiars Deary and Chalder.

Grip strength was "tested" in the physical assessment for PIP. My friend has had ME for over 25 years and has noticeably reduced strength. The physio just asked her to squeeze her hand, to measure this. Her report said "grip strength normal". One of my many comments for the mandatory...

He has v relevant experience

Is your date right @Trish?

My thoughts too!

Hi @fivetowns, welcome to the forum

Sounds great, the location as much as the conference!

Posts relating to the drafting of a letter to NICE about conflicts of interest in the Guideline appointments have been moved to this thread: https://www.s4me.info/threads/draft-letter-to-nice-about-conflicts-of-interest-in-the-guideline-appointments.6519/ Not sure that Joanne Bond Kendall has...