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Do any of the NOD (National Outcomes Data) papers help? https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-017-2437-3

This is a list of PAG members, referred to by the MEA in Mar 2017. https://www.meassociation.org.uk/2017/03/latest-update-from-the-mega-project-and-the-patient-advisory-group-29-march-2017/ http://www.megaresearch.me.uk/mega-team/patient-advisory-group/ It profiles 11 members and mentions...

Phil spoke about the PAG at CMRC Sep 20

Bump! deadline for this is 7 November, ie Wed. @Adrian are you applying?

Well done Graham

Thank you so much for the transcript, hope you recover from the exertion soon.:thumbup::thumbup::thumbup:

My hope is that Carol Monaghan and other MPs will be able to bring the errors of PACE, and other BPS studies to light. Hopefully the stranglehold that Wesseley and friends has is not pervasive enough to close this down...

Just had a quick look at her twitterfeed and she has had over 200 responses, so far.

The question asked related to "research", not scientific biomedical research so it shows the NIHR spending on Crawley and the rest of the BPS MOB (Monstrous Oppressive Bullies). If you go to the link you can say whether or not the answer provided answers the question. I would not have asked...

Was Gabrielle MUrphy still chair of BACME in March, when Per Fink spoke at their Annual Conference?

Do we know what the views of the other 3 lay members are?

I know a 21 yer old lad with diabetes. His pump was taken off him when he went to Kings because his control was not good enough! He was diagnosed aged 9 and had terrible trouble controlling his glucose levels thro his teens etc. He was also training as a chef. Not an ideal career, as he was...

I do not think that this is too worrying. Her role within end of life care must raise questions a regarding when her patients have or lose their mental capacity.

Is that the same Norma O'Flynn who works at the same GP Surgery as Mrs Wessely?

Thanks for this @Tilly. I am wondering why, in the list of Poster presentations on Page 11 of the above, it says Georgetown University at the end of the info. I guess it's probably a typo. It would have been hopeful to think that he had been in contact with Dr Baranuik from there.

I think the physio could be far worse.... She was at our table for the scoping mtg. She is obviously v pro Crawley and is the one who said that the Magenta results were looking good! However, she has only been under the Crawley dept since 2015. EC can be very persuasive if you don't know much...

? another one to add to your "shopping bag" and other weird and pointless studies in ME @dave30th. Different Uni but same BPS crap.

I wonder if she has any colleagues in Cardiff, or elsewhere, who would consider going to the training day in Bristol/Bath on 7 December which is concentrating on Safeguarding issues re ME in children?

Would MEA put a link to this on their website?

Roz Vallings seems to be the go to GP in NZ. There is also Warren Tate, who spoke at IiME conference last year and whose daughter has ME. @dave30th might have some suggestions. Isn't @Carolyn Wilshire based in NZ?