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How about next year's CMRC conference, if there is one, inviting Mary Dimmock to present her paper on the cost of ME to US economy? https://oatext.com/Estimating-the-disease-burden-of-MECFS-in-the-United-States-and-its-relation-to-research-funding.php I'd be happy to start the crowdfund for...

For children/adolescents Dx can be 3-4 months, I think. However getting to see someone who is able to Dx you in that timescale is pretty difficult, unless you pay to go privately, in UK.

CMRC PAG are now recruiting: https://www.s4me.info/threads/applications-invited-for-cmrc-patient-advisory-group.6143/

The above sections are taken from: https://www.hee.nhs.uk/sites/default/files/documents/CBT LTC MUS curriculum.pdf This is referenced in DT's Virology blog, but not above. The June 2017 revised edition of the "National Curriculum for CBT in the Context of Long Term and distressing Health...

Barcelona in the spring, sounds lovely. I wonder whether anyone relevant would like to attend? @Brian Hughes ETA: spelling

Last section for now: "unhelpfully restrictive behaviour, such as generalised withdrawal from physical activity or from role-related activity (such as relationships, work, hobbies), leading to impaired mood, confirmation of unhelpful beliefs, reduced self-efficacy and disengagement from...

For those with strong stomachs/feeling resilient... "Ability to draw on knowledge of specific psychological process that contribute to the development and maintenance of distress, depression and anxiety, such as:  attentional processes that increase the perceived severity and pervasiveness of...

Just looking at a small section on the first unit is disturbing: HEALTH WARNING: May make you feel nauseous/angry/..... "UNIT 1.3: Psychological processes associated with distress, depression and anxiety in the context of Long Term Health Conditions Aims To give practitioners an understanding...

Be sure to avoid polar bear liver as one serving has enough Vitamin A to be seriously toxic! Oh the interesting tit-bits you pick up at Uni.

This is the guy who was also featured in the programme "Oxford PHILOSOPHER and MEDICAL RESEARCHER, Dr. Jeremy Howick has conducted groundbreaking studies about placebos and why we need unbiased experiments. He has degrees from Dartmouth College, the London School of Economics, and the University...

I agree @Andy. My concern re the article was that both PwME interviewed said that LP had resulted in or helped with their recovery from ME. I am tempted to ask if CS read the whole article...?

Janet Lord, PhD, Professor of Immunology, University of Birmingham, and Chair of Immunology. Dr. Lord directs the Institute of Inflammation and Ageing and the MRC-Arthritis Research UK Centre for Musculoskeletal Ageing Research. Dr. Lord brings together fundamental scientists and clinicians to...

Thanks to the authors for taking the time and energy to do this.

@Amw66 Do you have a link to PR MEGA thread? May remind us who resigned from PAG. I still seem unable to access thread search there.

I would probably put something like "flawed trial" rather than just "bad". Feel free to ignore. I have minimal experience in these things and we would probably all write something slightly different. Thanks again for following this up.

Sorry @Andy, not being too serious. I loved the irony in your comment. I think you do a great job on the S4ME FB site though I don't visit it regularly as I get the info from the Forum.

David Mark's new book is >£30 on Amazon, but then I guess it is more of a Uni course book, than for the casual reader. Some of the PACE info is available on his blog referenced above: https://davidfmarks.com/2018/09/23/the-pace-trial-a-catalogue-of-errors/

@Amw66 were you at this/do you know what was said? Overall this #MM event seemed to have been excellent.

Other MPs who may be of interest: Sam Gyimah MP Minister of State for Universities, Science, Research and Innovation. His constituency is next to ours! He represents E Surrey, including Oxted. Interestingly our ME group has just been approached by someone in that area....

I'm pleased that he is speaking out. Yes, it would be better if he didn't conflate CF and CFS, but let's give him a chance.