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Thanks @Webdog, just what I needed to get me going on advocacy again this morning. Several emails drafted and groups contacted.

Hi @Andy I am happy to volunteer to attend the scoping workshop if the committee think I would be suitable

Unless your name is Donald Trump!

Another couple of gems from this guy! michael sharpe‏ @profmsharpe Feb 28 Prejudice is a great time saver. You can form opinions without having to get the facts. michael sharpe‏ @profmsharpe Feb 28 The hardest thing to open is a closed mind

The new Chairman and a couple of other Trustees seem very reasonable. I do not know how long they have been in post, except for the Chair. who was "appointed" at AGM in Autumn 2016. I agree that dialogue is good, and hope they do join in. I realise that for some, past actions are still too...

Z's husband is keen to make a formal complaint to DWP, which we may well do. I will also be sending a summarised version to Carol Monaghan/Laura Pidcock MPs. I am awaiting, with interest, the minutes from the last Forward ME meeting as the Chief Medic from Capita was going to be attending...

Hi Wonko, I am so sorry to hear this. I am sure that ATOS have ME down as a psychogenic illness, or MUS. On my friend's assessment report there were so many errors and they kept saying: "does not have a mental health condition, and no input for same". Part of my response was: "neither Z nor...

Old Familiar, Deare and Chalder excelling themselves here. Scores highly on the "drivelometer". PwME "score more highly on neuroticism and unhealthy perfectionism" https://www.tandfonline.com/doi/full/10.1080/08870440802403863?scroll=top&needAccess=true

Has anyone seen this gem? https://www.tandfonline.com/doi/full/10.1080/08870440802403863?scroll=top&needAccess=true

Last year's second day of CMRC was closed initially to associate members, ie non researchers/medics, but they changed their minds nearer the time and opened the second day as well. I had hoped to go, but my back was very dodgy and then my son was starting Uni, the foll w/e. I have put it in the...

Isn't Mark Edwards who is already on CMRC PI on that same study too?

EC is still on the list of confirmed speakers at ESPID 2018 http://espidmeeting.org/2018/scientific-information/confirmed-invited-speakers#.Wp70HujFLWV But it's not till end of May, so hopefully that can change. She was due to do an early ?breakfast session on ME as a 'Meet the Professor' slot...

Oh NO! But CP was not at the meeting

So, Chris Ponting will be deputy Chair from April They are talking about the BACME conference and BACME joining forces with CMRC, do they know that Per Fink is talking at BACME/

I think Neil Harrison gave a talk at IiME a few year ago, but his latest study in Sussex has raised some doubts re his aims. https://www.bsms.ac.uk/about/contact-us/staff/dr-neil-harrison.aspx

Here are minutes from a meeting in F 2018eb https://www.actionforme.org.uk/uploads/images/2018/03/cmrc-draft-minutes-060218.pdf

I hope this comment is tongue in cheek! Isn't she prescribing antibiotics to youngsters with appendicitis?

Thank you @Jonathan Edwards for all that you have done behind the scenes on this.

Does @dave30th know about this yet, or is it the middle of the night in Australia?

Overall yes, but they are cheaper than an operation, even though both options include hospital stays. Antibiotics for a recognised bacterial infection are still allowed.