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  1. M

    Resting-state functional connectivity, cognition, and fatigue in response to cognitive exertion: a novel study in adolescents with CFS (2019) Josev

    Hi @lansbergen, can I ask which immune modulator you have been taking?
  2. M

    Closed Your experience of ME/CFS services - Take the survey by #MEAction UK

    Last chance for you to have your say about initial advice you received during diagnosis process and what you think of NHS clinics! Survey ends at 5pm today #MEAction Network UK @MEActNetUK REMINDER! 24 hours until the deadline: Help us hit 2,000 responses Quote Tweet #MEAction Network...
  3. M

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Latest version published Very low quality of evidence. https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub8/full Moderator note: This post has been copied and subsequent posts will be moved to a new thread: Cochrane Review: 'Exercise therapy for chronic fatigue syndrome'...
  4. M

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Moderator note: This post has been copied and following posts moved from this thread: Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19 _____________________________________ [2019] Latest version published Very low quality of...
  5. M

    Dr Myhill’s complaint to GMC about PACE authors.

    Wow!
  6. M

    Closed Your experience of ME/CFS services - Take the survey by #MEAction UK

    Only a week to go for this. If you did not go to a clinic you can still fill in part 1.
  7. M

    United Kingdom: Science Media Centre (including Fiona Fox)

    :sick::sick::sick::ill::ill::ill::grumpy::grumpy::grumpy::mad::mad::mad:
  8. M

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    My understanding is that in people with ME there is a switch from aerobic to anaerobic metabolism of glucose at a much lower level of energy expenditure. For each molecule of glucose metabolised anaerobically, ie to make lactic acid, 2 molecules of ATP are produced, rather than 30 something...
  9. M

    BBC Radio 2 Jeremy Vine Glandular Fever / M.E. discussion

    Thanks for doing a transcript so speedily again @Sly Saint. There was mor Q and A with Sarah J after the song. Nearly all v good.
  10. M

    Graded activity is an important component in CBT to reduce severe fatigue: cancer survivors (Knoop et al., 2019)

    So, these people were able to wear an actometer for 12 consecutive days (and nights).
  11. M

    Forward-ME Group Minutes - 10th July 2019

    The response to TYMES Trust FOI request to the 5 Scottish medical schools, from 2017 is dreadful. http://www.forward-me.org.uk/Reports/Summary%20of%202017%20FOI%20responses%20from%20cottish%20Medical%20%20Schools.pdf
  12. M

    "Body Reprogramming: Patient guide for recovery using the Hyland model"

    Oh NO! "Body reprogramming is an approach to recovery based on a theory that has been developed by Michael Hyland, a professor that recovered from chronic fatigue syndrome." P6 of the patient guide.... http://www.bodyreprogramming.org/guide/PatientGuide.pdf
  13. M

    Andy's attempt to create a reasonable descriptive model of ME.

    Have you tried searching under Basal Metabolic Rate, used to be the term used for the metabolism/energy needed to keep the body going?
  14. M

    MS society funds study of immune system to understand why pregnancy can alleviate autoimmune conditions, possible ME relevances

    Good to see some niomedical research being funded by the MS society. Better than can CBT help fatigue in people with MS.
  15. M

    The HOME study - Michael Sharpe s CBT for the elderly

    Spot on @Sly Saint
  16. M

    Weekly collapses

    Could you get a cheap Heart -rate monitor to record what's going on when this happens, to take to a doctor.
  17. M

    Denmark: Analysis and comments to Karina Hansen's journal from when she was sectioned at Hammel Neurocenter

    So, Per Fink who ?initiated the unlawful sectioning was invited to talk at this year's BACME conference in March, when Dr Gabrielle Murphy was Chair. and ... NICE wonders why we are "concerned" about her and other members of BACME, being on the Guideline Development Committee. NB I cannot...
  18. M

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    So sorry to hear about how much you have suffered at the hands of those who should be helping!
  19. M

    REC advice on PACE trial data changed in favour of release

    Wasn't it the equivalent of "we've lost the key to the filing cabinet" or "the person who knew how to access it has retired"....
  20. M

    A role for a leaky gut and the intestinal microbiota in the pathophysiology of ME/CFS Vipond 2019 PhD thesis

    @MeSci and @Andy Just got an email from Daniel V thanking us for pointing this out. He is contacting the UAE library to correct this and also going to have a read thro' the rest to check, now that he has a bit more time. Simon Carding's talk at IiMER covered his PhD. Hopefully, that will be...
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