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What percentage of testing is done in people's homes and how much requires participants to travel to a site? This could give information on whether the more severely affected were underrepresented.

I presume "healthy" is an error here. They don't look like the scores of healthy people, but those of the general population. Elsewhere in the paper they are referred to as general population scores.

They don't point out that lower physical functioning, if it correlated with low activity levels, would mean fewer calories were being burned which could lead to a higher BMI.

Gender differences, for what they are worth:

Technically, all of the inequalities in the last sentence are the wrong way around, though most people could probably have guessed it

Good to see the following which I don't recall seeing much, if at all, in other papers:

Minor quibble: I don't think they are good definitions, particularly of moderate.

I don't recall any discussion in the paper about this set of data WHODAS https://www.who.int/classifications/icf/docs/36item_Scoring_Template_Simple_Scoring.xlsx?ua=1 Information on the questionnaire can be read here: https://www.who.int/classifications/icf/whodasii/en/ They presumably...

Yes, and in this study, they specifically restricted the ME/CFS sample to those aged 18-65.

Minor quibbles: The correct term is "chronic fatigue immunity dysfunction syndrome" I'm not convinced that we know that the fatigue is not relieved by sleep due to disturbances in sleep rhythm or quantity

Interesting. Yes, the link in the original post actually still works. This link which I shared around yesterday no longer works

This has now been made private for some reason. Frustrating when people like me have already highlighted it around (I'm not blaming the original poster)

Pre-print: https://www.preprints.org/manuscript/202003.0432/v1 Chronic Fatigue Syndrome and Fibromyalgia-Like Symptoms Are an Integral Component of the Phenome of Schizophrenia: Neuro-Immune and Opioid System Correlates

I’m around long enough to remember when some people and groups pushed for NICE guidelines for ME/CFS. It didn’t seem a wise move to me: it looked almost certainly that CBT and GET would be recommended and as a rationing body, NICE would recommend against many other treatments and tests. It’s...

For what it is worth: https://journals.sagepub.com/doi/abs/10.1177/1363459320912808 What was lost, missing, sought and hoped for: Qualitatively exploring medical crowdfunding campaign narratives for Lyme disease

https://link.springer.com/referenceworkentry/10.1007/978-981-10-0753-8_33-1 Mental Health and Illness of Children and Adolescents pp 1-8 | Cite as

https://www.sciencedirect.com/science/article/abs/pii/S0306987720302437

Mainly posting this for completeness Free full text ftp://venus.est.ufmg.br/pub/fcruz/pub/iwsm-chr.pdf

I haven’t looked into this in any detail but with Julia Newton saying she is no longer doing ME research “because funding is so difficult to secure” (from the last APPG meeting), the lack of biomedical researchers in the U.K. is worrying and it seems important to hold on to those interested if...