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  1. Dolphin

    Chronic Lyme Disease: a discussion of the epidemiological data

    The most raw scores for the SF-36 are on a 20-point scale. If I recall correctly, 10-30. So subtract by 10 and multiply by 5 to get non-normalized scores.
  2. Dolphin

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    So the prevalence would have been higher, looking at the other 2 criteria. Leonard Jason is interested in the sort of issues so I expect a breakdown of the data may be published in future papers.
  3. Dolphin

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    So more people could have had symptoms such as the post-exertional malaise symptoms, but at a lower level of severity or frequency. ---
  4. Dolphin

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    It's possible people who are more severely affected some or all of the time could have been missed due to the necessity to go to a hospital.
  5. Dolphin

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    This is probably what one is looking for in many ME/CFS studies assessing fatigue. Lots of people in society can have a vague feeling of fatigue but one is looking for something that affects function.
  6. Dolphin

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    A good thing about Leonard Jason is he doesn't “waste” lots of data. We’ll probably see 5-20 (?) more papers on this study.
  7. Dolphin

    Pacing - definitions and sources of information

    I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ https://www.actionforme.org.uk/uploads/pdfs/pacing-for-people-with-ME-Jan-2020.pdf ______________________ Moderator note: This post has been copied and posts discussing it moved to a...
  8. Dolphin

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ https://www.actionforme.org.uk/uploads/pdfs/pacing-for-people-with-ME-Jan-2020.pdf
  9. Dolphin

    Central Sensitization Syndrome and Hypothyroidism: An Evaluation of Symptom Severity and Comorbid Diagnoses, 2019, Howard et al

    CFS is listed explicitly in Table 4. Comorbid Diagnoses Though who knows what definition they use
  10. Dolphin

    "Complex Regional Pain Syndrome, Fibromyalgia and Chronic Fatigue Syndrome: Psychological or Physical Diseases?"

    "Complex Regional Pain Syndrome, Fibromyalgia and Chronic Fatigue Syndrome: Psychological or Physical Diseases?" 7 Jan 2020 https://www.medicolegal-partners.com/2020/01/07/complex-regional-pain-syndrome-fibromyalgia-and-chronic-fatigue-syndrome-psychological-or-physical-diseases/
  11. Dolphin

    Central Sensitization Syndrome and Hypothyroidism: An Evaluation of Symptom Severity and Comorbid Diagnoses, 2019, Howard et al

    Gives percentages of those with CFS broken down by severity https://www.spotlightonresearch.com/health-science-research/kh2019 Free full text: https://www.spotlightonresearch.com/s/Howard-K-et-al-2019-xtxp.pdf
  12. Dolphin

    Efficacy, side effects and withdrawal effects of carnitine

    I just looked it up: there is 78mg per 100g. So hard to get a pharmacological-level dosage from lamb.
  13. Dolphin

    Efficacy, side effects and withdrawal effects of carnitine

    It found that the effect didn't work when they stop taking it, which is different from the effect not lasting. 3000 MG of l-carnitine made a substantial difference to me. I particularly noticed when I stopped taking it as one can adjust to improved function and forget how bad one was quite...
  14. Dolphin

    UK All Party Parliamentary Group being reactivated - 2020

    This was posted to a list I'm on, in case it is of interest to anyone:
  15. Dolphin

    MEAction: "DEMYSTIFYING THE DIAGNOSTIC CRITERIA FOR ME AND RELATED DISEASE"

    Note: it also included the opinions of clinicians as well as researchers.
  16. Dolphin

    Fibromyalgia and the Gut Microbiome

    (copied from the ME Global Chronicle)
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