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Note that these are not the main Canadian ME/CFS criteria for adults

Emotional symptoms were not connected with school absence in this study, either.

Much of the bad science in the PACE Trial is common to non-blinded studies which aren’t going to disappear any time soon. Other PACE Trial papers have worse flaws e.g. normal range calculations in Lancet paper; ridiculous revised recovery criteria in recovery paper.

I doubt reviews of the field would include retracted studies. The point of retracting studies is I presume to remove the findings from being used as a basis for anything. So patients might refer to them in lay literature, but I think the standing of the findings would be lowered greatly and I...

I understand why someone might suggest this. However, this paper is useful in showing how ineffective the therapies were.

I wonder what they would have said.

The reporting of harms in trials of graded exercise therapy has not been good. I don't think they should be making such claims to patients.

This is frustrating to me. I know Peter White has done this before: given the impression the symptoms people with ME/CFS feel after exercising are just like those of people who are unfit.

There may be some value in the paper in terms of the particular wordings adolescents and/or their parents used to describe symptoms, their impairments, etc. Two quotes I highlighted to myself were But I'm not sure they or other quotes are that interesting so I'm not sure I'm going to spend...

Unfortunately there is no biological or objective evidence/research mentioned here either. I didn't come across anything that suggests the authors weren't anything other than sympathetic in how they presented their findings. However I'm not sure sceptic would find the results that interesting...

There is no real psychobabble in this. Nor is there promotion of CBT, graded activity or similar approaches. However it looks like an earlier version in the peer review process did ascribe some improvements to treatment in the centre Reviewer 2 said...

I haven’t followed this thread. But cognitive exertion of an exam caused a big relapse for me in college including physical symptoms. I had realised I needed to do less exercise during the exam period (had been swimming 1000 metres or cycling 6 miles/ 9 km virtually every second day for over a...

Perhaps not popular with some but the phrase “talk is cheap” (used in the title) comes to mind when people sign a petition for more research. It’s not particularly interesting that someone with an illness wants more research for their condition: with any condition people will want more research...

I read somewhere that the Open Medicine Foundation may be trying to apply for nonprofit status in Canada. I hope that happens. We need as much fundraising as possible for research in as many countries as possible, particularly countries with a population the size of Canada.

I don’t think thinking it’s the government’s job to fund all the research is the only reason not much is raised. But it is low-hanging fruit: an attitude that can be challenged with the facts. I don’t think ME is unique: I imagine there are quite a number of conditions where more could be...

It is hard to be certain now because of international donations but in the past the numbers donating in my country were very small and the numbers fundraising smaller again. And from what I see the numbers of people leaving money in their wills are very small worldwide. And I don’t accept large...

The way I would say it is it's quite likely for the time being that some government research money will go to professionals who believe in a biopsychosocial/rehabilitation/similar approach, especially given how many people are employed offering such approaches in many countries. This has been a...

Free full text: https://aasldpubs.onlinelibrary.wiley.com/doi/full/10.1002/hep4.1297

https://www.sciencedirect.com/science/article/pii/S1094695018302440

https://ethos.bl.uk/OrderDetails.do?did=1&uin=uk.bl.ethos.760921