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  1. Sasha

    American Society for Biochemistry and Molecular Biology article on ME

    We should at the very least click through so she can show the traffic, even if we don't have time to read the whole thing.
  2. Sasha

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I don't blame people for being sceptical at all. But I think we've got to be careful not to express opinion as fact, and not to put a spin on words that goes way beyond what they actually say. I think the signs are very hopeful but I agree that we'll just have to wait and see. I hope we won't...
  3. Sasha

    Royds Withy King - The PACE trial – “one of the biggest medical scandals of the 21st century”

    Wow - this guy is really focused on ME/CFS! Some excerpts from his bio (excisions indicated by ellipses): James Millar Craig Partner... James Millar Craig is a highly experienced lawyer who deals with personal injury, clinical negligence and insurance claims. About James A litigator with...
  4. Sasha

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I think you're doing those scientists in the CMRC who believe that ME is entirely physical a great disservice here. It seems clear now that there are quite a few, and that they're trying to turn things around. I don't think it helps us to see the CMRC as a blob consisting entirely of BPS people...
  5. Sasha

    Telebriefing by Trans-NIH ME/CFS Working Group on March 7, 3-4 PM Eastern Time

    I listened but don't recall anything especially earth-shattering (but I have the concentration of a pingpong ball).
  6. Sasha

    Telebriefing by Trans-NIH ME/CFS Working Group on March 7, 3-4 PM Eastern Time

    A little bump for this - I think it's on in 30 minutes. Anyone going to listen?
  7. Sasha

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Not all all - Esther Crawley was the deputy chair and has just been replaced by Chris Ponting. But the CMRC didn't have a hand in PACE and don't lock anyone up.
  8. Sasha

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I'm a bit confused by your post. Simon was talking about Chris Ponting, who is the new deputy head at the CMRC, not its head. PACE isn't on the CMRC's books and never has been. The CMRC has never locked people up. Are we talking about the same thing?
  9. Sasha

    MUS: "Medicine has a sexism problem" by Maya Dusenbery

    Some sort of insect-swarm apocalypse, maybe? Stop 'em all going up your nose and in your ears...
  10. Sasha

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    He has about 4,000 words on the Mental Elf where it's clear he's neither - continuing to praise PACE, even when people with a tenth of his academic training are shouting its problems in his face.
  11. Sasha

    Telebriefing by Trans-NIH ME/CFS Working Group on March 7, 3-4 PM Eastern Time

    Do they post recordings of these things later?
  12. Sasha

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    I agree it's good to have some sessions closed to protect early results and foster networking but otherwise, I'd like to see patients free to attend the talks.
  13. Sasha

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    I don't see why patients shouldn't attend all the presentations.
  14. Sasha

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Seriously, @dave30th, why not attend?
  15. Sasha

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I think it's probably very good news indeed, but we need to see what happens. But that push isn't something ever associated with the CMRC, is it?
  16. Sasha

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    ...according to today's announcement about the CMRC's new purpose, objectives and values: https://www.s4me.info/threads/cmrc-agree-on-a-new-purpose-objectives-and-values-which-replace-its-previous-charter-march-2018-ec-also-to-leave-the-board-of-the-cmrc.2809/#post-50325 Should be interesting...
  17. Sasha

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    There were some good people on that, IIRC, who were critical of the bad things in MEGA. This whole thing makes me wonder if their arrival on the scene and what they said helped change things. If so, hats off to them! :trophy@
  18. Sasha

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    It's like Christmas! build on the momentum created by the Institute of Medicine in the US by securing a high-level report on the illness and research in the UK, and use this to seek greater investment from policy and decision-makers secure a James Lind Alliance Priority Setting Partnership...
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