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Would Charles Shepherd know, @Russell Fleming?

@strategist, can you add this event to the calendar?

Hi, @Russell Fleming! :) On this thread, we're wondering what we should do to follow up on the debate. Has the MEA any plans for what patients might do now? If so, is there anything you can say about them (on that thread)?

I'd like to know exactly how we push for this. What do we as patients need to be doing?

We crossed, Andy - I think Hansard will provide a transcript, probably today.

Answering my own question from here: https://hansard.parliament.uk/about So it looks to me as though Hansard would cover it and maybe we can expect something today.

Won't Hansard do that? If so, what's the timescale?

From @ Binkie4 on another thread: I have not been able to read the whole thread yet but wanted to insert here advice from our MP. We have worked with him before and approached him to invite him to next week's debate but he is unable to be there although he did attend Unrest. He has however...

I've started a thread to discuss what we should do next: https://www.s4me.info/threads/how-to-follow-up-on-the-carol-monaghan-debate-in-westminster.2513/

Following the stellar job done by Carol Monaghan at the debate today and the (IMO) PACE-defending, useless response from the minister, what should our next steps be? People have mentioned some things but they're buried in the the pre-debate threads. I'd like to know what Carol Monaghan thinks...

Bump! On in ten minutes. :woot::nailbiting: The place to be seems to be online, here: http://www.parliamentlive.tv/Event/Index/cf2fde9d-f327-4bf4-8e72-1fc6124b8998 On Freeview, they're showing a debate about Oxfam.

Yes, I wish they'd explained their use of Lyme as a control right at the beginning.

Good panel (details from Eventbrite, here), and good to see that @dave30th will be the moderator. :thumbup: Panelists: Lily Chu MD, MSHS has a background in internal medicine, geriatric medicine, and health services research. She is currently co-vice-president for the International Association...

Suffolk was trying to go biomedical. I don't know what its current status is: http://forums.phoenixrising.me/index.php?threads/uk-norfolk-suffolk-nhs-me-cfs-center-goes-biomedical.40268/page-4#post-826626

https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00027&utm_content=bufferfe471&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer

There's a form that asks for your name, address, email and phone number and then a form email for you to send to your member of Congress (below). I'd guess that you should add your address at least to the email so that your Congress member can see that you're their constituent. Subject line...

Do you have a view on any of this, @Jonathan Edwards?